Bell's Palsy Support Group

Bell's palsy (facial palsy) is characterised by facial drooping on the affected half, due to malfunction of the facial nerve, which controls the muscles of the face. Bell's palsy is the most common cause of acute facial nerve paralysis and affects about 40,000 people in the United States every year. Additional symptoms that may accompany the condition are pain around the ear and loss of taste.

0 Online
0 Online

Does your face hurt?

There are certain areas of my face that hurt to the touch, like right above my eyebrow or along my jawline. I guess it feels almost like sinus pressure under the skin. Does anyone else have that? I'd say it's on the BP side of my face, but I'm one of the rare cases who developed Bell's bilaterally.

Replies

deleted_user
deleted_user

Ah, as one rare case to another, I can't say that I remember ever feeling what you describe. I'm another rare case, in that while it's only on my left side (I never knew it could develope bilaterally), mine has lasted for 31 years; it's pretty much permanent. The only pain I have is a cramping of my jaw when I cry or sometimes if I laugh especially heartily.

Have you asked your doctor about it? Perhaps he can tell you what to expect.

Good luck!
Carol
deleted_user
deleted_user

I was diagnosed with BP 3 and a half years ago now. Although any signs are almost completely gone my face is still tender, however it's not as painful as it used to be. I used to get severe migraine headaches from the pain and found that pain killers (prescription??) where a big help. I can't remember all of them but one that springs to mind was mercandol (not sure of spelling). Hope this helps. Best of luck to you.
Carissamr
Carissamr

When I first realized I had BP I looked up everything I could find about it. I read alot of post in groups like this and a ton of people said that they were in pain. I thought I was lucky not to have any pain but as I started to heal I realized what they were all talking about. My jawline/cheek area was extremely sore and painful when I touched it. The cold weather didn't help either. Now that in almost healed the pain has gone away. I still feel a little soreness but it's nowhere near as painful as it once was.
deleted_user
deleted_user

Yes... I have that exact pain... I'm a "new" BP patient... I'm 47 year old otherwise healthy female and woke up on March 15, 2009 to find the right side of my face paralysed from Bells Palsy. The affected side of my face feels like it's been battered & bruised... I am still not finished my prescription of Prednisone as it has been only 8 days since the onset of my paralysis...I thought perhaps that the sinus pressure pain could be a side affect of the steroids?

I don't understand what developing BP bilaterally means??? Can you explain?
Carissamr
Carissamr

developing BP bilaterally means you have it on both sides of your face. It's rare but does happen.
deleted_user
deleted_user

I have had BP for 2 years now, it's on the left side of my face, I get an actual cramp and it hurts like a you know what, I still get some tingles which makes me think it's getting better, but I don't know :(
deleted_user
deleted_user

I was diagnosed with this three weeks ago. I found that once the symptoms had developed properly and I started to regain movement of some of my face the pain felt worse. My cheeks and side of face and above my brow feel sore and bruised to the touch and I get stabbing pain around but not in the ear and occasionally on the brow bone above my left eye.

Movement has begun to return to the muscle. It started with uncontrollable twitching and fluttering across my left side. Now I can smile and move parts of the face and the brow has lifted. I never thought I would be so pleased to see forehead wrinkles! sympathise with those who have had no improvement, I salute your courage in dealing with this frightening condition.

This morning I woke up with the stabbing pain, but have noticed that my brow which felt bruises no longer feels that way. I can only assume from this that it is part of the condition and recovery process. My doctor at the hospital ENT was not really helpful when I was seen a few days into the conditon. He pooh poohed the fact I had pain, put it down to 'tension headache' He said that there was no pain associated with Bell's. Everything I have read says the opposite. Conclusion: He has no idea and obviously got his medical degree from the local 7/11 store.

This is a frightening condition, but not life threatening and because of this I find that the sympathy vote from folk around you is not high. My family seem impatient as though I have done this deliberately just to annoy them. In fact I was accused this morning of just looking for symptoms, presumably in order to milk the situation. All I can say is that nobody who has not suffered from this condition can really know how terrifying it can be and the vagueness of the medical profession on diagnosis is even more terrifying. My silly young ENT doctor said:

"75% of people recover in three months, the reest will have recovered by ten months. If there is no improvement by that time then you are stuck with it for life. 10% of sufferers never ever recover."

He said this quie cheerily and my face must have fallen because he then hastily proceeded to assure me that I could get surgical intervention to make my face look more normal. I am not sure how that was meant to reassure me.

Anyway, the worst I have found of this condition apart from the obvious physical signs, eating and drinking very messy etc, was the fact that I couldn't close my left eye which meant drops, manual blinking covering the eye at night, wearing my glasses and not my contacts etc. This has improved qhite a lot, although the lower lid is still quite weak. The other thing is the facial pain. I am just gritting my teeth and taking painkillers.

My upper lip cramps sometimes, but this is not terribly painful.
deleted_user
deleted_user

Thank you everyone to your responses to my original question about pain. I am now 8 months into it. The BP on the right side is pretty much gone. I still have the BP on the right side, but it has improved. I can smile to a certain extent. I can blink my eye better and wear my contacts again. Although when I wear my contacts, the effects of BP on my eye are much more noticeable. I'm happy to say that most of the pain is gone. My dr kept dismissing my questions about pain, but I'm glad to hear others say that I'm not the only one who had pain with it. (Not that I wish pain on anyone.) I don't know if I'll ever have all the movement back in my face, but I'm grateful for what has returned so far.

Stay strong!
Tammy
deleted_user
deleted_user

I keep posting this in different threads but I have to because it worked!! When my BP didn't heal after 3 months, I got electric shock therapy and it helped so much, noticeably in the first treatment. I just asked my doctor for a prescription for physical therapy. I think I had maybe 6 treatments (w/ facial exercises) and my movement returned almost completely by 8 or 9 months. Stay strong.
deleted_user
deleted_user

Recently, and I am on 4 1/2 months with Bell's on right side, I notice that jaw line is sore and that the muscles on the right cheek equally sore...also, a sort of pain, discomfort in the head at the level of the right ear...I can't ever get a straight response from any of the doctors...the only real information I receive is in relation to different sites and responses about Bell's.
My lip still so weak on right side, when I talk, spittle comes out...I fear that this might be a "forever" case...I don't know..have done predniksone, antiviral, acupuncture, vitamins...and it is still very obvious. Sheilah
deleted_user
deleted_user

Im in my 8th day and i been taking solone and acupuncture, im about to start chinese medicine too, i have bells palcy on my left side and 2 days ago i had acupuncture after which the next day (yesterday) i started getting a really painful jaw, according to some people on here it means its starting to heal? i will ask my acupuncturist today as im having it again this afternoon. i wonder if anyone has every gotton over it in any less than 8 months im desperate as i work in retail and im scaring the kids by smiling :( help
deleted_user
deleted_user

i developed bells palsy a week ago, but for the last 2 days i have been in agony it feels like my affected side (left) is badly bruised, i have a very high pain threshold but this is really bad, docs dont seem to agree that its because of the bells palsy, i have no idea what to do as i cant put up with it much longer!
deleted_user
deleted_user

i spoke to my acupuncturist and he said it means your healing and my face still hurts like hell too and the back of my head on the left affected side, im so over it, im in my 2 week with bells palsy and i have seen little improvements like i can move my mouth now and my cheek. my eye closes now and i can taste my food again, and its all because of my acupuncturist and the steroids the doctor put me on, between the two im not far off being cured, i hope it will be gone by next week :) fingers crossed lol
deleted_user
deleted_user

i just got bell's palsy my left side of my jaw near my ear is swollen and hurts all the time,i finished up prednisone but i didnt even notice any change.everytime i take a drink or eat something i get a tingling pain that shoots to my jaw and i start to saliva alot and it get a metalic taste in my mouth..anyone have this symptoms??? please if so what did you take and does it make the jaw pain go away..i cant take this..
deleted_user
deleted_user

Hi everyone,
I am new to this, I am 3 days away from being 40 weeks pregnant and I was diagnosed with BP a week ago. It certainly put a dampner on everything for the 1st few days, I was to embarrassed to go anywhere. Now I have read all your stories which has certainly made me feel a lot better.

Yesterday I started feeling like I had been punched in the face on the effected side and a bit of twitching in my eye and lips. I hope this is a sign of recovery...