I received a call from Haydens doctor this morning regarding the Swallow Eval he had done last week. She went over the results more in depth this time and also what the feeding tube would entail. She said that the nourishment would run for about 12 hours at night while he is sleeping, he can still eat IF he wants to but only give him what he wants to eat and do not give him more than he wants. They are hoping by doing this that he will learn to like food instead of it being something that we are always forcing on him. She hopes to get him into the Gastroenterologist within the next three weeks. She said his length if fine (25 to 50 percentile range) but his weight is not even registering on the growth chart..(so it is hard to say how far below the 3 percentile he is).. That means 3 weeks of me hoping beyond hope that he will start to eat more or drink more before the dreaded day comes that I have to take him there. He will see one at Cardinal Glennon Children's Hospital in St. Louis. Are there any parents here that have a child with PDD that had to have a feeding tube due to Neurodysphagia? If so I would love to hear from you.
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