I received a call from Haydens doctor this morning regarding the Swallow Eval he had done last week. She went over the results more in depth this time and also what the feeding tube would entail. She said that the nourishment would run for about 12 hours at night while he is sleeping, he can still eat IF he wants to but only give him what he wants to eat and do not give him more than he wants. They are hoping by doing this that he will learn to like food instead of it being something that we are always forcing on him. She hopes to get him into the Gastroenterologist within the next three weeks. She said his length if fine (25 to 50 percentile range) but his weight is not even registering on the growth chart..(so it is hard to say how far below the 3 percentile he is).. That means 3 weeks of me hoping beyond hope that he will start to eat more or drink more before the dreaded day comes that I have to take him there. He will see one at Cardinal Glennon Children's Hospital in St. Louis. Are there any parents here that have a child with PDD that had to have a feeding tube due to Neurodysphagia? If so I would love to hear from you.
Posts You May Be Interested In
I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...