Asthma Support Group
Asthma is a disease of the human respiratory system where the airways narrow, often in response to a "trigger" such as exposure to an allergen, cold air, exercise, or emotional stress. This airway narrowing causes symptoms such as wheezing, shortness of breath, chest tightness, and coughing, which respond to bronchodilators.
warning: this can be an overwhelming complication.
heres all the factors of the problem ive been fighting: ive been struggling with breathing/weight problems since at least early adolesence. i think was nice n healthy til about 10 or 12, been obese ever sense. also had narclepsy onset around that time, and for last 5 years ive been mostly bed ridden in some kinda... i dont know how to describe it... some kinda breakdown/suicidal depression/PTSD/loosing the will to live struggle. also my mother smoked ever since i was a child, dunno if that couldve affected anything. when i try to excersize now... god... its fucking HORRIBLE... first i start straining for exygen about 60 seconds after a good level of physical activity, my mouth gets cotton dry almost immediately (medication side effect), i get dizzy soon after and sometimes i need to stop to take naps. its pathetic. im a mess and my weight has been a horrible insecurity problem in addition to the general secretive failure causing narcolepsy complications that wasnt diagnosed til 19. i dont remember what its like to enjoy being in this body. also, not having insurace and being disabled making a serious deterent to successful weight loss. 99% of ppl would be over whelemed to tackle so many complications at once, but i dont know what else to do so im gonna try this new thing for me. im giving up and handing it over to a higher power. also 2 other important notes, Drs think i have pretty bad ADD or maybe ADHD(apparently the Hyperactivity doesnt always mean physically, it can also be a mental hyperness ive heard. i dunno) which can make repetative things unbearably boring to me. but on the good news, i have an open window at the moment with my depression. its lifted this month with some real life problems solved. Drs arent sure if im bipolar or severely depressive with "artisticly energetic periods". probly bipolar but its sometimes hard to accurately identify a manic phase. especially since my memory is complety shot...
lol.... ya.... wow.... pretty over whelming.... i was agnostic for 24 years but i dont have the option of self life-control anymore. i tried to get healthy and fix things for years and im out of options. and so far giving up control to "it" life/god/nature/higher power/idk has broght some VERY suspicious problem solving coincedences soon after. im not saying im 100% sure s/hes real, im just saying like 10 or 15 really coincedental good things have happened that ive been struggling with for like 5 years happened. if some kinda higher power coincedentally bring someone that can help me beat this and feel good about my body again... i dunno... its a long shot, i dont see how i can beat so many problems all at one time. this might be to extreme for a coincedence to fix. i dotn wanna say out of his/her leauge but ... i dont have any other options anymore. i need to get healthy. i dont wanna end up at rock bottom again and i need to be physically healthy to fight my other problems. its almost impossible to function with narcolepsy, bipolar without the energy, confidence and stress releif of physical activity. so... god/whoever... this is me saying im in over my head, ill take anything u wanna give me *crosses fingers*
P.S. (ugh ADD)
oh... what ive done so far... ive been getting alot better sleep thankfully, and ive been looking for more jujitsu/aikido classes to help get some energy/motivation/enjoyment. i was given an inversion table that i hope will help my back pain. im trying to eat healthier altho i only have about 5$ a day for food, making it hard when grocery shopping.
heres all the factors of the problem ive been fighting: ive been struggling with breathing/weight problems since at least early adolesence. i think was nice n healthy til about 10 or 12, been obese ever sense. also had narclepsy onset around that time, and for last 5 years ive been mostly bed ridden in some kinda... i dont know how to describe it... some kinda breakdown/suicidal depression/PTSD/loosing the will to live struggle. also my mother smoked ever since i was a child, dunno if that couldve affected anything. when i try to excersize now... god... its fucking HORRIBLE... first i start straining for exygen about 60 seconds after a good level of physical activity, my mouth gets cotton dry almost immediately (medication side effect), i get dizzy soon after and sometimes i need to stop to take naps. its pathetic. im a mess and my weight has been a horrible insecurity problem in addition to the general secretive failure causing narcolepsy complications that wasnt diagnosed til 19. i dont remember what its like to enjoy being in this body. also, not having insurace and being disabled making a serious deterent to successful weight loss. 99% of ppl would be over whelemed to tackle so many complications at once, but i dont know what else to do so im gonna try this new thing for me. im giving up and handing it over to a higher power. also 2 other important notes, Drs think i have pretty bad ADD or maybe ADHD(apparently the Hyperactivity doesnt always mean physically, it can also be a mental hyperness ive heard. i dunno) which can make repetative things unbearably boring to me. but on the good news, i have an open window at the moment with my depression. its lifted this month with some real life problems solved. Drs arent sure if im bipolar or severely depressive with "artisticly energetic periods". probly bipolar but its sometimes hard to accurately identify a manic phase. especially since my memory is complety shot...
lol.... ya.... wow.... pretty over whelming.... i was agnostic for 24 years but i dont have the option of self life-control anymore. i tried to get healthy and fix things for years and im out of options. and so far giving up control to "it" life/god/nature/higher power/idk has broght some VERY suspicious problem solving coincedences soon after. im not saying im 100% sure s/hes real, im just saying like 10 or 15 really coincedental good things have happened that ive been struggling with for like 5 years happened. if some kinda higher power coincedentally bring someone that can help me beat this and feel good about my body again... i dunno... its a long shot, i dont see how i can beat so many problems all at one time. this might be to extreme for a coincedence to fix. i dotn wanna say out of his/her leauge but ... i dont have any other options anymore. i need to get healthy. i dont wanna end up at rock bottom again and i need to be physically healthy to fight my other problems. its almost impossible to function with narcolepsy, bipolar without the energy, confidence and stress releif of physical activity. so... god/whoever... this is me saying im in over my head, ill take anything u wanna give me *crosses fingers*
P.S. (ugh ADD)
oh... what ive done so far... ive been getting alot better sleep thankfully, and ive been looking for more jujitsu/aikido classes to help get some energy/motivation/enjoyment. i was given an inversion table that i hope will help my back pain. im trying to eat healthier altho i only have about 5$ a day for food, making it hard when grocery shopping.
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I miss traveling with my husband. Has anyone found a specific site regarding cruising for widow/widowers or any sightseeing trips. Not interested in being with couples and kids,,,I realize a cruise ship will have a portion size of families and couples, but perhaps they also put together a part of the cruise ship for groups of widows/widowers????
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A friend sent this to me..As far as I can see, grief will never truly end.It may become softer overtime, more gentleand some days will feel sharp.But grief will last as long as Love does - ForeverIt's simply the way the absence of your loved onemanifests in your heart. A deep longing accompaniedby the deepest Love some days. The heavy fog mayreturn and the next day, it may recede.Once again, it's...
There are sevral tings that really baffle me in yoru post. The first you say you are disabled...are you registered disabled or what?? and also if you are disabled surly doing somehitng such as jujitsu or akido as you said you were looking for courses in it would be the worst thing you could possibly try. In what capacity are you disabled?? because if it is physical should you not be looking to do somehitng more stimulating your mind rathe than physically.
also is it asthma that is preventing you from exercising or is it because you are over weight. these are two very different things. if you are over weight your heart ahs to work harder to pump the blood round the body and the srteries are often in a bad way due to high cholesterol. This then has an effect on the lungs or is it the lungs go first and then the heart.
You also say you dont have insurance yet you seem to be going to the dr alot and ahve their opinions in this message alot. that must ahve cost a bit.
Im not sure how it works in the states but if you are disabled do you still ahve to pay for meds??? i know here in gb we dont if you are disabled you dont ahve to pay prescription charges.
Also I may sound slightly harsh on saying this but from my perspective as some one who desperatly wanst to be abel to live their life and cant you seem to be wallowing in self pity a bit. there maybe several factors affecting you whihc you havnt mentioned but it is almost a case of pulling yourself together and getting a grip. if you wnat soemthign bad enough you will do anything for it. I desperatly want to be able to breathe properly again and walk like i used to and am gonna try dam hard to do it.
Im not saying it will be easy but if you are determined and want something you wil do whatever it takes. We cant expect peple to wave magic wands and make it all better we have to achieve these things oursleves.
Also you cant expect to achieve everyhting at once. it may take a long time to achieve what you wnat. but you will need to look for help in delaing with your problems.
Have you a job?? i have often suggested to people to get some kind of employment. it keeps the mind stimulated and this helps the body. often people will say they cant work because they are disabled but i know a huge number of people who are disabled and do tiny jobs but they are so proud of themsleves for being able to do somehitng. you dont have to be mobile. some of my firneds are in bed and do it over the internet like managin people accounts etc.
everyone always has options. giving up on yourslef is giving up on life. and with that attitude then what else can people do.
you say most people would be over whelemd to tackle so many complications...i am sure they would be but people would be more overwhelmed if you were able to tell people that you have over come these and can live you life.
I knwo this sounds like a lecture but after fighting for my life for the past three months it gets to me when people just want to give up on their life which they can do something about and they can live.
Olive
Since this is an asthma board, let me address this first. As Ohana asked, knowing your peak flow readings would provide a good indicator for both diagnosis and treatment. When you get all short of breath, how long does it last and do you use inhalers? If so, do they bring you relief?
The main thing is, you need to get to a doctor somehow for a professional assessment. Sometimes shortness of breath is another unrelated cause. Scrape some money together and see if you can get some specific guidance to your situation.
I hear some deep depression here, mania maybe as well, and I want you to know I've been there. The brain doesn't work well under these conditions and this can be the reason you are having difficulty organizing your thoughts.
The things you write of can be lots of things. Asthma is diagnosed by a clinical exam; bipolar disorder and ADHD are also conditions that become worse with stress. Obesity often complicates all of these conditions.
I don't know if I've been helpful or not, but just know I am trying to be.
Good luck with the adderall meds....please post and see if your aunt succeeds, okay?
Finally, feel free to contact me with specific questions or concerns. I understand self harmful thoughts and I managed to get through it. My prayers are with you and I wish you the same.
oh i dunno if i mentioned this but, the breathing restriction only happens after i start working hard or usually during an orgasm, which seemed odd to me. idk maybe thats a normal thing in asthma. again dont mind my ADD. ill post again if i remmeber anything important since DS wont let me update previous posts
Maybe I am misunderstanding, but you said you tried a rescue inhaler? It is dangerous to use other people's prescription meds, so I wouldn't recommend it. But to answer your question, yes, usually there is an immediate perception of your lungs response to albuterol. When I have bad coughing spells, it is the the rescue inhaler that calms me down best.
Yes, having 4 things going on simultaneously certainly complicates things but I would try to focus on one thing at a time. I know that is hard to do.
Life often throws us muliple problems...I certainly who about that myself. Any past medical records can help your MD figure out the details. I know when my depression and attention is bad, my memory takes a decline. Most people are like that, Ark01.
Hang in there....remember, one step at a time is a good way to approach it. Small steps at that. I think you posting to the DS community is a good step toward health.
Take care and post again. We are all here to be supportive of each other. :-)
ok ohana ill read advice page, see if i can find anything useful. i wish doctor visits were easier. the university clinic might help but i always feel kinda guilty i think since i dont have any insurace of money. so i never go there unless i absolutely have too. but i think being able to excersize successfully would make a huge difference with my sleeping, stress relief and self esteem.
You don't have seasonal alleriges by chance..they can be a serious problem to some folks. Ohana
Something that makes me think about your description of difficulty taking air into your lungs...sounds almost allergy related. Do you have an awareness of your triggers? Think of this in terms of environmental allergies perhaps. Does pollen, for example, impact you? Dust, air quality and temperature, etc.? When you exercise, are you breathing in cold or hot air? Just wondering.
Have you studied breathing techniques for exercise ? Do you use a pulse/ox to check on your saturations ? How much overweight are you ? If you are a smoker..how many packs a day do you smoke ?
I think your flaming you issues.
Even the sickest people can do isometrics or slowly walk in a pool.
If anyone understands the most severe limitations it's olive, Ohana, Rona and me. Likely there are others too.
I think the mental health section may be more bennificial.