My daughter was diagnosed with Arnold - Chiari malformation when she was 4 years old and has not had any symptoms until now. She is now 15 and is having neck pain and headaches. Medication prescribed for her headaches helps somewhat, but not always. We saw a NS and he is recommending that she have decompression surgery. He cannot say for sure that the neck pain and headaches are from the Chiari, but that she may be showing symptoms from the Chari now. She does not have any other symptoms. We are going to see another neurosurgeon in November. My daughter wants the surgery to relieve her pain, however, our concern is that this may not work and that the surgery is risky. Has anyone with a child experienced this and have they had the surgery?
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