my question is pretty simple, where do you find the hope to keep going? I have chiari one malformation, eds, crainial settling, occipital neuralgia, and scoliosis. i havent been to school in a year (im home tutored, i had to stop going in the 9th grade) and had to quit skating which took up all my time before becoming sick last year. i try my best to be the brave person that feels like she can handle this but in all honestly im just tired. each day it gets harder to wake up and put on that smile and pretend im not in pain. i know the doctors are trying but i feel like there is something i should be doing, something to keep my head high and know i can do this. any ideas?
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