Arnold-Chiari Malformation Support Group
Arnold-Chiari malformation, sometimes referred to as 'Chiari malformation' or ACM, is a congenital anomaly of the brain. Arnold-Chiari Malformation II occurs in almost all children born with both spina bifida and hydrocephalus, but ACM I is typically seen in children and adults without spina bifida.
Most all the symptoms I had before surgery remain or came back. Is this the norm. I was 45 years old before they found I had ACM.
deleted_user
That is a bummer. Sometimes, if you have had it for a really long time, the damage is permanent. I hope and pray that my doctors know what they are doing as I have Chiari, a very small chiari, but they don't think it needs surgery. I have other issues though. Anyway, good luck with that.
deleted_user
How long has it been since you had surgery?
deleted_user
It is my understanding that the surgery is to stop the progression of symptoms but not necessarily to reverse any you had. Some of my symptoms went away right away only to get them back. I found out that I have increased intracranial pressure AKA Pseudo tumor cerebri. I get lumbar punctures to relieve the pressure. For the forst week after all of the symptoms go away and then slowly come back. I am a lot better than before the surgery but when everything acts up it's almost like I never had it. coughing still causes pain. changes in the weather cause problems (per the NS my head is like a barometer).
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