I was diagnosed with Chiari a few months ago. Since then I have found a NS in my area who has dealt with this before. Apparently I have a 20 mm herniation and my brain is down to my second vertebrae in my spine. My symptoms appear to be getting worse. I have another appt with the NS next month but it is so expensive just to go see him and I have no insurance. Working literally kills me now. I groom dogs and it is a completely physical job. On a day I work, I come straight home now and go right to bed at like 4:00 in the afternoon and don't wake up until the next morning. This is everyday now. I also have the tingling / numbness in my hands every day now along with the ringing in my ears. I don't even have enough energy left by the time I get home to take my dogs outside to go to the bathroom, cooking dinner is completely out of the question and even ordering dinner from somewhere or eating dinner rarely happens anymore. On my day off, if I do absolutely nothing, I sometimes still need a nap in the middle of the day especially if I try to clean my house or do laundry, I have take a nap in the middle of it. When I start getting tired, I start falling over..especially if I had already been sleeping and I woke up to use the bathroom or something. Even when Im not tired, I am just very dizzy like all the time. Recently, and I don't even know if this is related at all, if I am watching tv or talking on the phone, or just listening to someone for an extended period of time, all of a sudden it starts sounding like the person is talking in a whole other language and I can't understand them. Also if I have to look at someone or something for an extended period of time, the person or object starts looking funny..like almost two dimensional. Its so weird and then it starts to scare me and I get a panic attack. Both of these have only happened a couple times in the past few months and I don't even know if it is related to the chiari. But now I am getting really depressed because I can't get anything done, I can't cook my boyfriend dinner for when he gets home, I can't take care of the house or my pets, and how am I ever going to be able to have a child if I can't even take care of myself right now? I feel like I am sleeping my life away and everything is hitting me all at once. I am scared of having surgery but right now I feel like I have no choice. My ns said that it is the only treatment but I can do it when I am ready. I don't think I will ever be "ready" but I do think that I am getting desperate for some relief. I would really like to talk to someone that has had the surgery so I will have some idea of what it will be like and how hard recovery will be and everything. I just still have so many questions..Thanks!!
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