Hi everyone, Im new to this site but definitely not new to Chiari. Im 22 years old and will be graduating from nuring school in 6 more days! granted I pass my exams. But anways, about 3 years ago I started to have severe pressure in my head with rising in the morning, and would go off to work pukeing, pull over to puke out of the car, fall in the door after work to lay down so i wouldnt..puke..you name it, if i had the pressure in my head...i was puking..so going to my doctor he just prescribed me something for migraines which did not work, prescribed me something for sinus infections which did not work, sent me for allergy testing which came back negitive, sent me to the dentist which was a waste of time..pretty much sent me to hell and back, all while i withered away to a whoping 93 pounds, jobless, and living on my couch! Finaly I made another appointment with my doctor and he refered me to a neurologist who in turn refered me to a neurosurgeon because he said my "neuro exam" was fine.. The suergon sent me for an MRI and odly enough around this time the pressure was not as severe, I was functioning..I was getting out of bed DAILY..what a miracle..and I was starting to put some pounds back on. I didnt feel like my head was going to explode! He did diagnose me with Chiari, but didnt show me the MRI, didnt tell me what to do, didnt give me much information on it..and basically sent me home crying thinking the worst and gave the orders "come back if your symptoms get worse". What symptoms? what the heck was I suppost to be looking for? Well how do I explain this...I went from not being able to rise in the morning AT ALL..to 6 days away from passing nursing school which was very hard..I do still have the severe headaches, just not daily..and not debilitating..but I do notice other symptoms. i have severe hand tremors 24/7, I see floaters in my vision, I have severe fatique, seme to walk into things quite often, HAVE to keep my same sleeping pattern or I get a throbbing head for 2 days, have a sensitiviy to light and sound, and while im now great 113 pounds, I still just dont feel myself..If i do anything strenuous, laugh to much, yell to much, sneeze alot, I get the pressure..So clearly im not cured, nor will I ever be unless i decide to do the surgery, but now that im going to be looking for my first real full time, stress loaded, on my feet all day, using my brain alot job! im starting to get nervous..I still live with my parents. But im afraid if i start working, get my own place, ya know the whole being on my own deal..that things will just get worse on me, and would be much harder for me if i had to have surgery, being that i would be my only support(home care, financial wise). But the problem with having the surgery now, excuse my french is IM F ING TERRIFIED of it! to the point where i almost rather suffer, because i cant bring myself to do it. This is the kid who broke her arm and should have had pins but put on my pouty face and got out of it. The kid who had strep like twice a year and should have had a toncilectomy, but guess what? they are still in there :)..and those are simple every day surgeries..Now we're talking brain surgery? HA! what in gods name do i do to ease my surgery phobia? :( Im not a whimp, Ive always been tough, was a little tom boy growing up, and have a pretty high tolerance for pain..but this surgery phobia is just making me suffer in more ways then one...
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