Arnold-Chiari Malformation Support Group
Arnold-Chiari malformation, sometimes referred to as 'Chiari malformation' or ACM, is a congenital anomaly of the brain. Arnold-Chiari Malformation II occurs in almost all children born with both spina bifida and hydrocephalus, but ACM I is typically seen in children and adults without spina bifida.
Has anyone had a lumbar puncture after chiari surgery? I had the decompression in July and was doing well but proggressivley the symptoms are coming back. Not thrilled about the idea of having one but I don't know what else to do.
deleted_user
I would go through with it. It may be able to tell them if the decompression was/wasn't successful. They want to check for the opening pressure I am assuming. If it is high, then the opening may be too large and a shunt or larger patch might be needed. If the pressure is low, it could mean that a blockage has formed somehow. Have they done an MRI or a Flow Study to check for a blockage? I would have them do that before the lumbar puncture.
deleted_user
I had to have a pacemaker put in because of the tachycardia and problems with heart probably caused by chiari. Having the LP done today. Read a study that my NS did about this only 6 people but they all got relief. Hope it works.
deleted_user
You will be on my mind today. Hope all goes well and that you get some relief. *HUGS*
deleted_user
I had the LP today and I actually feel better. I don't have the headache or the pressure feeling. I am hopeful and think this may have been just what I needed.
deleted_user
What did the doctor say? Was your pressure high or what? It seems silly to have to go through a lumbar puncture after having the surgery to help with the pressure issues. I hope they are able to get things working well again.
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theatre and I are there already. I'm having a very berry tea with crackers, cheese and cherry tomatoes and she's having a joint with some beer and we're both on really comfy recliners on thick pile carpet. we need some help with the decor if anyone is around??
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I'm trying to exercise daily. I was doing fairly well until I sprained my ankle 2 weeks ago but now I'm getting back on the horse. Today I walked over a mile with my arm weights that are about 22lbs total. I was out of shape and it was hard on my arms. I also did my 30 situps. I'm also going to drink a lot of water and try to eat healthy. I do tend to have a sweet tooth but I'm cutting...
