Does anyone know of a good Chiari Dr.? We already tried Barth Green but he does not see children. My daughter is 11 and started having symptoms 8 months ago massive headaches in the base of her skull, black out spells. We also believe that the Chiari could be causing a heart issue (long QT) Neurosurgeon surgeon at Miami childrens says it might be possible but he's not sure and he's not that experianced in Chiari surgurys (only 100) for my liking. We are willing to go out of state but want to make one trip to someone who is recommended and possibaly somewhere where they can confer with a cardiologist. We have already drug her to every doctor there is (cardiologist, genetisist, neurologist, neurosurgeon) and we can't get anyone to agree. Surgeon says "surgury will help" neurologists exact words "you'll operate on me before i let anyone touch her." Very frustrating and all we want is our girl to be able to be 11 again.
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