Has anyone had the surgery
my husband was just diagnosed with CM with about 8-9mm of tonsil decention. We have an apt with a neuro surgeon in the next couple weeks. But I've been reading a lot about the recovery and finding that it's hard to find people with CM let alone that have had the surgery. If anyone here has had the surgery would you be willing to tell me how it went and how recovery was for you? I've been reading 1m up to a year of recovery time with the possibility of it not even doing much to help symptoms. TIA
-freaking out wife
I've been "sick" (as much as I hate to use that word) for the last 12 years. There's been one diagnosis after another, but they've all eventually been disproven and I'm just left with a host of debilitating symptoms that can't be explained. All of my specialists are agreement that there's definitely something physically wrong that's causing all of my symptoms, but they just haven't been able to...
The Mayo Clinic is obviously world renowned, but I've heard many mixed reviews regarding their ability/willingness to diagnose and treat Chiari, Ehlers-Danos III - Hypermobility, and Craniocervical Instability (CCI). Some people say Mayo is great at evaluating these conditions and others say they're not. I've also heard some say that Rochester is good, but Jacksonville is not. Does anyone have...