Some days I just get so down about what I can't do anymore. No more walking without a cane, can't walk on the beach (can't walk on a grassy lawn), can't pick up a grandchild who runs up to me, etc etc. I know I am lucky I am not in a wheelchair yet but I know that is coming. I have a wonderful, patient, kind, supportive husband. I have a good family (in-laws) who love me but don't really understand Chiari & SM & don't ask me about it. I have an amazing daughter who lives 9 hours away & has her own live as she should have at age 29. I am amazed at what many in the group can do, still work, chase kids around, walk. I don't know how you do it & I am so happy for you! But sometimes I just get so down & it's hard to get back up, you know what I mean?
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