After experiencing a stroke-like episode my PCP ordered a brain MRI. Ten days later I rec'd a letter from my PCP stating the MRI showed pressure at the base of the brain and he thought that was the cause of some of my symptoms. The diagnosis made by the radiologist was Chiari 1 Malformation with a 10 mm extension. I took these results to a neurologist I have seen 4 or 5 times over the last 3 years for MS-type symptoms, and he told me that I should not be concerned and he didn't think my symptoms are because of the CM1. He did a few in-office exams, checked his notes back to the first time I saw him and agreed that my symptoms have worsened. He then put me on Lyrica for the nerve pain and told me to come back in 3 wks. I flew home to go on-line and get more info on CM1 and was blown away by the lists of symptoms I saw that I am experiencing. And I'm reading that surgery is the only option to relieve the symptoms that are so negatively affecting my life. So now what do I do and where do I go if a neurologist tells me I shouldn't be concerned?
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