Our 11 year old son was diagnosed with CM1 this month, he also has a large syrinx and a tethered cord. Our neurosurgeon has recommended he have surgery (decompression and tethered cord). We are scared for him and uneducated about the recovery and what to expect. Does anyone know what we can expect with and 11 year old? What is recovery like (hospital, time off school, etc.)? What will his life be like after, he is very athletic and loves to play sports, what will he be able to do and not do? We appreciate your feedback, thank you!
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