I too have chiari malformation I was diagnosed three weeks ago after having shoulder and neck pain for almost 2 years. The pain i suffer daily is so intense and i am allergic to so many medications that i cant take only a few pain killers but the doctor wants me to see the neurologist before he gives drugs. I am not due to go to the nero until the 7th of February. i would like to discuss a list of my symptoms and see what some of you could help with.
its started out over a long period of time. i used to get migraines all the time and the dr kept telling me it was from my periods. after having my kids and a hysterectomy at the age of 24 still migraines. my dr gave me many drugs and never a test.
I just stopped caring. I dealt with the headaches on my own stopped all the drugs because nothing helped. then thanksgiving 2 years ago i was out mud bogging with friends and hurt my neck and shoulder. I dealt with it but the pain persisted. so i finally went to the dr after 8 weeks of NSaid's i was still in so much pain sent me for a mri of just my rotators cuff event though i explained my pain to be in my neck and down my spine and into the lower underneath of my shoulder. Came back with being totally negative. and then the pain started getting worse only on my left side i started with numbness down my arm then pain then my hand clenching. He was convinced it was a nerve. i had enough. something had to be happening for this to be occurring. so i went and found a different family dr. immediately he noticed something was wrong i had weakness and numbness in my arm and face by then. he sent me to physical therapy which i couldnt handle and then tried relaxing techniques. and after about 5 weeks of no change except getting more and more pain and now dizziness and nausea and this pain that feels like someone i slowly pulling on the underneath of my neck he gave up sent me for complete mri with and without contrast and ct scans. I went in for a check up after my fiances heart surgery for the dr to say i have the wrong number for you and i needed to see you so glad your here. i was like um no we are here for him. next thing you know he says i found something wrong and its not looking so good. he diagnosed me with the chiari malformation and wanted me to get to a neurosurgeon immediately my insurance now wants me to go to neurologist first. But in the mean time he sent me to a medical rehab dr to do and emg to see what nerve damage i have since my arm and hand wont function proper she told me that i am am at 12mm below where it should be and some of my two blood levels are very wrong. does anyone know what these two levels are and what does 12mm mean?

I am very new and sorry i was long with it but i have so many new symptoms lately that its so hard to keep up. i have even been blacking out.