I have been diagnosed with primary APS for 12 years but the only time I have suffered from hives is when I drank too much Lemonade as I have a slight allergy to lemons.

Oh, and welcome to the group.

Casey

Hey Casey,

It's very strange to me. I get them significantly a couple of time a month. My body also seems to "crash" every once in a while. Leaving me very fatigued and achey. My doctors say it may be a sign of developing Lupus but that has not been diagnosed yet. Thanks for the response.

Hi,
I have a question....Are most of you all with APS on Plaquenil as well???? APS can cause almost identical symptoms as Lupus (hives, sores in the nose, mouth, muscle/joint pain, fatigue, fevers, headaches, flare ups. the list goes on. I felt like I was dying before I was put on Plaquenil and now most of my symptoms are gone. I still have issues, dont get me wrong. I flare up and feel sick, cannot tolerate the heat, as well as having muscle weakness/joint pain, but it is much less severe being on Plaquenil and prednisone. I havent heard of anyone really speak about being on Plaquenil in this group. It can be a great help to APS people.
Melissa

Hi all -I have suffered from hives at one time or another since I was 2 years old and got a reaction to tomatoes. My mum says my nose is upturned because I was a always doing the allergic salute ( rubbing my nose with the back of my hand) She always used calamine lotion on me .
As an adult I developed SLE APS and PBC .
For the past 2 days I have had a small outbreak on my neck and upper chest. I bathe it with cold water and it settles for 5 or 6 hours but won't quite go away.
Usually the ones on my arms and neck are dust related ( sigh I love old books) and a cool shower usually settles them .
Once or twice a year, for no rhyme or reason (that I can figure) I wake up with them on my hips and thighs and sometimes my torso.
these are more difficult to remove and last for a few days.
Thankfully they are very occassional
Hope you can find some relief from them

The simple answer is yes. Hive of unknow origin many times. As a matter of fact it is the factor that put me in the hospital for treatment when I had mulitple PEs. They missed that initially but treated me for the hives pretty aggressively.

WOW, I just found this site today. So glad to have found and also surprised about the link to APS and SLE and hives. I've been struggling with hives since Dec 2008. At the current moment I'm on 4 different meds to keep it controllable. If I don't take them on time I start itching. The 4 meds are singular, allegra, clarinex and zantac. I really don't want to stay on the above 4 meds forever because that would bring my pill intake to 10 per day - that can't be good long term. Has anyone had success with one med that keeps the hives away? Thanks, Lisa
P.S. I was diagnosed with APS in 2003 after 2 miscarriages. Other issues include: allergies, acid reflex and gout. I know I don't fit the profile for Gout but my experience with APS is a lot of things do not make regular medical sense.

I have also experienced hives alot, I just chalk it up to my allergy to certain chemicals. I have to take benedryl and clarinex to control it. I also have GERD and take protonix for that. Everytime I break out in hive I have the fear that my throat will close up again (has happened twice before) due to an allergy to thimerosal, but maybe the hive are just due to the APS.

Thanks Abby for the reply - my adopted daughters name is Abby. Do you have to take the benedryl and clarinex daily to keep from having an outbreak or when you have an outbreak? I take protonix for acid reflex. I've noticed when I take protonix for acid reflex then 2 zantac 150 to keep from getting a hive outbreak, I have tons of hair loss. Thoughts?

I take the clarinex daily to avoid hives, benedryl when I have an outbreak, the protonix is okay for the reflux(insurance company stopped covering Nexium which I loved) I still need pepcid to help with that, I also did have some hair loss issue too?!