Ankylosing Spondylitis Support Group

Ankylosing Spondylitis (AS) is a chronic form of arthritis--it is an inflammatory disease that causes joints, cartilage or other fibrous tissue (such as ligaments and tendons) to turn into bone. Ankylosing spondylitis is part of the group of rheumatic diseases. The disease is characterized by progressive stiffness, tenderness, and pain in joints. Pain can be episodic and...

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Muscles & Bones
/ Ankylosing Spondylitis Support Group

new to group and needing support ...

deleted_user
deleted_user
i joined this group looking for support from others with AS i have had AS 10 plus years only dignosed 5 plus years, i am currenly on my 4th infushion of remicade that was sopose to be 8 weeks apart and only made it 4 really but getting my treatment at 6 weeks .. i am in soo much pain, i feel so lonly and depressed yet i am a mom and a wife and have to keep going when what i really feel like doing is running away and hiding . i am so sick of hearing "oh you look good" so u must be feeling good what i want to say is i feel like a bag a of poooh and don't have the nerve, i don't have any neck movement and the dr thinks its moving down as the pain is about my mid back now .. i keep active and get massages , but i am just ready to scream...
thanks for listening i could go on for ever and well will after ..
thanks
tina
deleted_user
deleted_user
Hi tina34. I think we all need to vent our frustrations with this condition, from time to time. Don't feel bad about it, at least the members here know what you are experiencing. I'm sure you'l find some good information as well as some shoulders to lean on.
Me... I can't live without my electric heatpad, especially when trying to get some sleep.
Hang in there. Cheers
deleted_user
deleted_user
Hello tina34,
deleted_user
deleted_user
Hello tina34,
My friend suffered with AS for 24 long years, was close to being bed ridden and got well after being introduced to negative ion clothing and bedding.
He can walk, can run, can sleep well at night without pain nor discomfort. He can turn his neck to either sides, his back has behaved well for close to 5 years now. He's no longer a disabled!!
You should check it out. It will change your life for better. Good luck!
deleted_user
deleted_user
Hello Tina the good part is they have better meds than they used to have and you have been diagnosed fairly early so that the meds might even help you. Excersise, stretch, deep breathing, think positive and maybe you should just go ahead and give a really blood curdling scream and tell everyone how you feel at least once. I can't stand massages any more, just makes me feel worse, takes an hour just to get over it. I'll have to read up on neg. ion blankets but even if it works just a little maybe along with MsCowgirl's heating pad could be just what the world is waiting for. Till then I'll stick with oxycontin and celebrex. If you wear neg ion clothes are you attracted to folks with pos. clothes?? Get a good dr and bug the hell out of him or her and make sure they know exactly what your going through , you might just save yourself a lot of pain later in life, good luck to you,Slainte
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