I am new to this website but am trying to gain some support on the internet because I need to talk about my illness and my hubby and friends seem to be tired of talking about it-- because it's not happening to them. I haven't "officially" been diagnosed with Ankylosing Spondylitis because my lab work is negative. My rheumatologist believes that this is what I have and I tend to agree with him once I read the symptoms. I am 38 and have had 2 serious bouts with uveitis- so much so that even oral prednisone and injections into my eye were not successful in getting rid of it. That said, since my last bout with uveitis, I keep getting these terrible headaches. I have had migraines since I was a small child and have Zomig to take for them. However, since my last bout with uveitis last fall, I have had different headaches.....more painful, lasting longer, and NOTHING brings relief. I have been thinking of going to an ER for an injection but I hate going there. The pain is in the ridge of the eyebrow (of the eye that has the uveitis) and then radiates throughout my face and base of my skull in the back of my neck. I have taken up to 1000mg of Motrin and some Flexeril and that helps some, but my Ultram doesn't touch it at all. The doctors just call them atypical migraines but I think they are wrong. My rheumy thinks that it might be nerve damage in my eye (but located in the eye brow). Anyone else have these types of headaches? Just curious if I am weird or if this is typical?
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