My cousin was dx last year, he has a peg tube, trach and is on a vent. The last two weeks have been horrible. I am so scared. This last week I stayed with him, his vitals would be good one minute and terrible the next. His heart rate went from 200 down to 47 in a matter of seconds. He has a catheter but has not had any urine output since last night. I am worried that his kidney's are shutting down. Also, he hasn't been able to tell when he needs to have a bowel movement. The doctor came to the house Thursday night and wrote him a prescription for morphine. He had one drop on Friday and he was so out of it most of the day and then his oxygen went down to 75 (and he is even on oxygen) and his eyes rolled back and we couldn't wake him up. It took him 4 hours to get stable. We used to be able to suction him with the cough assist machine but now he is having to be deep suctioned all the time. We are having a hard time understanding him and he gets so frustrated. Even though he has a trach he has normally been able to eat, but hasn't been able to in 4 days except for yogart or ice cream. It seems everything is happening at once. I am so scared. He said that he was ready for it to be over, I can't bare to hear him talk about that. He is only 39. It just breaks my heart, I start crying and can't stop. I try so hard to not do that in front of him. I love him so much. I am scared to death that this is the end
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