After 30 years of doing battle with phantom pain mostly at night/trying to sleep, I lucked out with a new Provessor of Medicine/Doctor in our tiny mountain community. We hit it off well and he seemed sincere when he said "give me two weeks to do some research" and he would get back to me. 10 days later he called and asked me to come in. phanton pain originates in the brain. Victims of shingles often have severe or moderate pain that also originates in the brain. There is a new drug (non-narcotic) called Lyrica that was developed for shingles pain and seizure. We started at a moderate dose 75mg per day. But he gave me an OK to try taking it at different times and to go up to 300 mg per day. It took a week to start working but at 300 mg it worked. I now take it 2 hours prior to bedtime and with a few exceptions, the pain vanishes by bed time. My is not a PAIN but a tingling sensation that drives you nuts when you are trying to sleep. When I over do it, walk to much, spend too many hours on my feet, the phantom sensation is stronger and I now have his OK to go up to 450 MG as needed. The max daily dose is about 800 mg but this is for severe shingles victims. Lyrica is not cheap but my insurance company picks up 90% of the cost. If you have an amputee support group, please share this info with them. Only side affect is that it does make you sleepy so I never drive after taking Lyrica - I just look forward to a good nights sleep!
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