
Amputees Support Group
Amputation is the removal of a body extremity by trauma or surgery. Many have undergone amputation or have been living with a missing limb since birth. In either case, life as an amputee can be challenging. This is the place to find others going through the same experiences as an amputee. Share your thoughts, troubles, and solutions with the community.

deleted_user
Something is defintly wrong with me lately. I can't figure out exactly why or why not. I have felt the need to talk about feelies. I know we all do that in our head but never say it outloud. I had above the knee of my right leg in October. The worse of it for me is the phantom pain. I have had them so bad that I thought about the emergency room then I remembered they can't do anything for nerve pain. The worse thing about the whole thing is that nobody really believes that we hurt that much. I know that there are different pain levels but the fact still is that we only have it in our mind and we could stop it if we wanted to. It just can't hurt that bad. Or worse yet the "look" you get. MY husband is a nonbeliever. He thinks I should go off all my meds and I probably will feel better. It also doesn't help if you show him the articles of phantom pain. So what do you do? Thats my question today
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Apart from the phantom pain, which I hope to get on top of soon, I am doing fine. Only 2 weeks after my operation, I had my staples and my stitches out today.
#2 Non-amputees will NEVER understand phantom pain.
Need I say more?
Any way, I will. :) Phantom pain is your brain sending signals to the part of your body that is not there to keep functioning, as it always had in the past. I have found there is a difference between phatom pain and phantom sensation. Phantom pain is the sharp knife stabs running down your "leg" that can come on in an instant. Phantom sensation is how I describe it, is like when your real foot starts to fall asleep and you get a tingly senation. I use to have TERRIBLE phantom pain for months after my surgery. I ended up going to a pain clinic at the univeristy hosp where my surgery was done. They tried diff. tests on my and found a medication that worked, but made me drasically gain weight. Needless to say, I weaned myself off of that ASAP. I currently do not have phantom PAIN but i believe i will ALWAYS have phantom sensation, the tingly feeling that i feel in my phantom leg. it feels like my andkle and foot are still there, kinda like they've fallen asleep. i live w/ this sensation daily, that it has become a normal part of my life that i don't even think about any more b/c it's just always been there since my surgery. I wish you the best and hope my now you've found some more help with this matter.