Please get involved politically. We have to change the laws. Corporations are ruthless. Also there is a health care reform discussion on DS they might have some suggestions for you.

Unfortunately I don't have an answer for you, but I just wanted to tell you how SORRY I am so hear your news. Do you mind sharing what carrier you have? I wouldn't mind doing a little research for you if I have some info - I do know a few people who work for insurance companies, and come from a 'law' family. :)

Good Luck!
Misa

We're in a similar situation. My daughter started a new job that doesn't offer health insurance. Every place (about 15) we've applied turns her down because of Addison's.

Someone else wrote about pre-existing conditions no longer applying, but they sure seem to!

I am sorry about your daughter's situation. There is an organization: U.S. Uninsured, 1-800-234-1317, which is not an Ins. Co., but an outstanding referral source, for the uninsured & most importantly, those with pre-existing conditions. If you provide your state, they'll research Ins. Cos. The rates can be relatively high, however these referred Cos, do work with philanthropists, who provide assistance with premium payments.

Once you receive the contacts for an Ins Co, ask for the names of organizations, for help with premium payment assistance. I know of 3, but there may be more:

1. Caring Voice Coalition 888-267-1440 *
2. Health Wellness Foundation 800-675-8416
3. Patient Svcs. Inc 800-366-7741

I do not understand why this pre-existing issue remains, given the so-called Healthcare Reform, but it certainly does! I'm hearing this more & more. Out of curiosity, why was she dropped? There must be an appeals process, for reasons other than non-payment. If the basis was due to treatment costs, that is a violation, on many levels.

I completely agree with SharonHanson. We absolutely need to be heard. Corporations must not dictate, nor interfere with access to quality medical care, a Human Right. As a side note, it is the Pharmacy Companies mandating Health Ins. Eligibility AND dictating Governmental decisions.

*Misa is EXTREMELY loyal, so consider her offer to be genuine.

I thought it was ILLEGAL to drop a minor for pre-existing conditions after the institution of the health care law in September, 2010, call your congress person. They may be attempting to reuce their risk and to force a move into the PCIP program ( you choose the coverage you get).
I lost my insurance 15 years ago and now am insured through the federal Pre-existing Conditions Insurance Plan (PCIP.gov) where I am able to purchase insurance despite the AD diagnosis.
This is outrageous and I encourage you to also contact your state insurance board along with the congress person.... and you can call 1-866-717-5826 (PCIP) and talk to them.
This post has gotten me agitated, I encourage everyone to become proactive politically... the House of Representatives desire changes to privatize all health care... even medicare. We already have privatized medical care.. and competition has not served anyone well.... except the insurance companies!
Good luck and please keep us posted.

Something I read on the Internet leads me to believe that the pre-existing condition acceptqnce doen't take effect until 2014.