Addison's Disease Support Group

Addison's disease (also known as chronic adrenal insufficiency, or hypocortisolism) is a rare endocrine disorder. It is estimated that it affects about 1 to 2 in 100,000 people. It occurs when the adrenal glands, seated above the kidneys, fail to produce enough of the hormone cortisol and, sometimes, the hormone aldosterone

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Addison's Disease and Menstrual cycles

Like I've said before, I was diagnosed on April of 2010, since May I have had a period every 2-3 weeks and they last about 7 days. My endo said Premature Ovarian Failure is quite common with AD. My thyroid levels were checked recently and they seem to be ok right now. Has anyone else had a similar experience?

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deleted_user
deleted_user

Hi Amanda,

...same, but different...hopefully helpful?

I don't have premature ovarian failure. I do have a disruption in ovarian follicular stimulation, with same symptoms you've described. Maybe the cause of each is similar, yet different terminology?

My endo pays special attention to prolactin levels. Prolactin is secreted by the pituitary and the receptors are ovaries, kidneys & adrenals, to name a few. I believe this is the key. Of course EVERYTHING in our endo sys is thrown off, with AD/AI, but I think you should really have your hormones, esp'lly prolactin checked.

Levels do naturally vary, depending upon cycles, disruptions, etc., but you can get a quasi baseline, with regularly schedulled, repeated tests.

If you reseach prolactin, you'll more than likely get info on lactation & mammary glands. You have to research something like 'The Relationship Between Prolatin & Addison's Disease'.

Either way, I don't believe thyroid function tests would give you the info/answers you're looking for, in this case. I have a full hormone panel done yearly, with intermittent hormone blood tests, when problems arise.

I hope this gives you some direction.
deleted_user
deleted_user

i have no clue if this helps, but i have PCOS -
polycystic ovary syndrome.

i was diagnosed w/it before i was diagnosed w/addy's, but then again, who the hell knows when we really ever *get* addy's, right? not me, anyway, although i do believe the PCOS came first.

as for periods, mine haven't changed too much - i almost *never* have them! i used to have the opposite problem, and now i might have one every 6-8 months, if that. crazy, right? the good thing is that my doctors aren't worried about it - so i'm not, either. it is the ONE health issue i have that i don't mind, haha!

hope you get everything figured out, amanda! best of luck. i've been at this for almost -or maybe even - six years now, so feel free to message me if you have any questions or need anything. it's nice to be able to bounce things off of other people, as i'm sure you're figuring out ... this is one STRANGE disease.

xo, misa
deleted_user
deleted_user

Thank you both for your input, I really appreciate it! You have both given me good directions to check out. I am def going to have my levels checked as soon as I am able.
Thank you again and I hope you both are doing well!
deleted_user
deleted_user

Hi Amanda
I was only diagnosed in November 2010 and since Christmas day (2 months now) I have had regular bleeding every day with clotting too. It sounds like a lot of us are in the same boat but my doctor seems to have no idea about my condition (AD) at all. I am going to see the endocrinologist at my local hospital on Tues for the 1st time as an outpatient (as I was diagnosed and admitted to hospital in adrenal crisis, out of area). I am going to try to find out what it is all about then. Sounds like you all know a lot more than I do though!
Louise, Reading, UK
deleted_user
deleted_user

You might need to see or want to see a reproductive endocrinologist they specialize in GYN and the hormones. I had been seen by a reproductive endocrinologist before I needed a regular endocrinologist. I have asked my regular endocrinologist if she would want to deal with that end of my care and she said no. The reproductive endocrinologist can figure out a lot of why cycles are crazy and help to either regulate your period or in my case stop my period. I the bright side they understand Addison Disease.

I have had issues with my periods, not only PCOS, large fibroids and just plan crazy periods last for 14 days and not ever being regular. I have already had a uterine embolization which in should decrease amount of blood flow to my uterus due to a large fibroid who decided to grow on the artery.
deleted_user
deleted_user

I was just diagnosed with Premature Ovarian Failure. My LH and FSH are always elevated due to fact that my ovaries are not responding. (kind of like high ACTH when cortisol is low). I have not had a period in a year. We dont know how long i have had this since I was on birth control for about 8 years. When my fertility specialist checked my LH and FSH levels, it was always elevated and said i was post menopausal. I am 26 and want to have kids soon i might add. They told me the only way to have kids is through egg donation. Those are some things you might want to check out.