I was diagnosed with intermediate risk AML NPM1 marker but negative for FTL3. Just wondered if anyone else had this mutation.
I am on AML19 trial in the UK. I live in England. This trial includes 1 dose of a targeted treatment called Mylotarg. I went into a complete remission on the induction and have had 1 consultation and am about to have the next one.
If the NPM1 marker has gone in my results fron my consolidation I will only gave chemo to finish off, but if it hasnt I'll need a transplant.
I'm 46 and have recovered my neutrophils and blood levels quickly after the 1st two rounds of chemo.
Just wondered if anyone else has the NPM1 marker and how they are doing?
I was dx'd with AML after passing out in a local pharmacy April 10, 2018. I spent nearly 2 months in the hospital. I finished my first round of chemo and was dx'd with pneumonia, fungal pnemonia, and C-Diff. Finished Hi-dac and now and preparing for my BMT. I am so excited, nervous, and scared. I am so exhausted, and can't get enough rest. Today has been a rough day, I am trying to give my...
My mom has been diagnosed in January with FLT3 mutation. We have been at Jefferson hospital in Philadelphia who have been very helpful although we have been referred to John Hopkins or penn medd to see if there are any other options of helping her due to her antibodies rejecting any matches. She has 4 siblings and 3 children all 50% match and a stranger 90% match , all of which had trouble with...