I was diagnosed with intermediate risk AML NPM1 marker but negative for FTL3. Just wondered if anyone else had this mutation.
I am on AML19 trial in the UK. I live in England. This trial includes 1 dose of a targeted treatment called Mylotarg. I went into a complete remission on the induction and have had 1 consultation and am about to have the next one.
If the NPM1 marker has gone in my results fron my consolidation I will only gave chemo to finish off, but if it hasnt I'll need a transplant.
I'm 46 and have recovered my neutrophils and blood levels quickly after the 1st two rounds of chemo.
Just wondered if anyone else has the NPM1 marker and how they are doing?
My husband has AML, with inversion 16. It had gone into his spinal fluid and he had to have intrathecal chemo along with his induction therapy. He is 62 years old and is now awaiting his third consolidation therapy. By this time on his two prior consolidations his numbers had recovered and were doing well and increasing daily but this time his numbers (WBC, RBC, ANC) came up but his last...
5 years ago, I spent my thanksgiving day in the hosp dx with AML and had 2 inductions and one consolidation and was on a transplant pathway. My last blood work my platelet was still 78- almost the same for the last 4 1/2 years. I considered everyday a blessing, but sometimes our environment, job responsibilities and stressess in life makes us less thankful. Being a Christian and surrounded with...