Hope somebody can give me some advice, my daughter has just had a week atthe hospital she has been going there for over a year, always with the same face ear and neck pain, she went down for her mri scan and when the doctor came back he said that the tumour was pressing onthe trigeminal nerve, we said how come you have not picked this up before, did it not show up on previous scans, he said it was there, but they were concentrating on the tumour, we were so upset, we have been going there for a year and a half.and she has suffered so much, we saw a neurosurgeon who has put her on Amytryplin, hopefully to ease the pain, he wants to see her in 3months if this does not help he mentioned Gamma knife, she has already had external beam radiotherapy, also they have changed her from lanreotide to sandostatin, because herIGI-F has gone up quite a lot, does anyone else suffer with Trigeminal pain, or take Amyttriplyn. Hope to hear from someone soon.
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