Cant believe it, the pain my daughter has had since before diagnosis is back, we thought going on the new drug Pegvisomont had worked for the ongoing pain in ear face and neck, 7 weeks it went away, doc asked her to wean herself off the Dostinex, which she has done,I think the dostinex was helping with the pain, its seems more than a coincidence that the pains back after stopping Dostinex, does anyone know if they get pain relief from Dostinex, shes been like a different girl for nearly 2 months, its awful to see her back in pain and crying again. Thanks
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