I am new to site and am looking for some support from folks who really understand the stress and journey of this disease. I was diagnosed in September 2006, by the way just be accident when i had a CT scan for an unrelated illness. I felt so blessed for the finding as i had been ill for several years and multiple physicians were unable to determine what was wrong with me. Had surgery at MAyo and told that i had a 20% chance of recurrence. IGF1 okay and wihin normal limits in OCtober of 2007 and then this week went to see endocrinologist who came to my office to tell me that my IGF1 is now 337......I know that my situation is not the worst, but I have to tell you that i am so depressed and angry about this. It has only been a day since i found out so i need to calm down and figure out what my next steps might be. Need MRI and need to start thinking about whether or not i will return to Mayo or allow someone in my hometown ( Indianapolis, Indiana ) manage this. Any advice or support that the group to provide me would be greatly appreciated, especially at this moment
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