Just wanted to make myself known on the forum. I am a doctor my self, but it was my mother who detected my diagnosis. Just goes to show; listen to your mother:-) Anyway, I have seen some endocrinologists (they work in the same department) and been diagnosed. I have a relatively large macroadenoma, which for the last 3-months has been treated with Sandostatin LAR.
The hope was for Sandostatin to lower IGF1 and GH and also possibly shrink tumor before surgery. After 3 months it turns out that Sandostatin has not had the desired effect, so endcrinologist has referred me for transsphenoid surgery as soon as possible. Even though we have excellent health care here in Norway, I still must expect some waiting time before surgery. Maybe a month or so.
I toggle between feeling "fine" (especially when I am busy at work) and feeling really scared! I was so disheartened when I was told Sandostatin had no significant effect on the hormon levels. I just really hope surgery will be succesfull (either get the entire tumor out or achieve control of hormone levels). I keep my fingers crossed, but I really dont know how this will end.
Anyway, thanks for reading:-)
Wondering if others would share their experiences with the long term effects that acro has brought into their lives - whether you have attained clinical remission or not. The physical challenges, mental and emotional hurdles, and effect on relationships that you have encountered are all welcome. I am trying hard to understand if my inability to cope is weakness of spirit and body and if there...
Hello there! I just joined this support group & am excited to find others like me. I had surgery on Feb 7th of this year (2017). I didn't really notice my jaw protruding too much before surgery but it definitely was there. After surgery it still is and may even be a little worse? My smile seems like a "joker" smile. I have a underbite (had this before surgery) and can't even open a ketchup packet...