I am in the process of (probably) being diagnosed with acromegaly. Description of symptoms in nursing textbook, went to my doctor, delayed action for two years due to lack of time and insurance, went back recently and asked again, and got referred to a (diabetes) endocrinologist. He poked around a bit, asked questions and decided I had a good case. Drew some blood and reported results in five days, sent me to an ophthalmalogist who found a visual field defent consistent with a brain tumor. That was yesterday, 2-19-09. Now I have an MRI and visit with the endo and a neurosurgeon, all on 2-26-09. My head is in a whirl. I haven't said anything to my son and my daughter yet. I think I'll wait til after the MRI and results. I just paid off my little 30-acre farm (I'm widowed 9 1/2 years, 55 yrs. old) and now I'm concerned about paying for all this. Will I lose my farm to pay for all this? I'd planned on passing it on to my children, as they have nobody but me (they're 25 and 29, married daughter has a toddler and a baby with Down's Syndromea and under major stress in her life already.) The endo and neurosurgeon are neither one associated with Vanderbilt University, just down the street. Would I be better to go to a teaching hospital that might have more resources? I earn less that 9.00/hr.and just barely make enough to pay the bills. I have BlueCroos/BlueShield that will pay 80 percent. Maybe I don't have a pituitary tumor, but my symptoms tell me otherwise. I finished 2/3 of my nursing training before I had to withdraw due to exhaustion which started to affect my grades (working 32 hours on weekends). How do all of you pay for the treatments, tests, etc.? Should I try to get into Vanderbilt? And if so, how does one do that? Just ask? I wish my husband or my parents were still around to at least listen and offer some opinions and help. I'm feeling very alone, although I do realize that God is here with me, and maybe I just need to trust and keep taking one step at a time. I look forward to hearing from anyone.
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