20 years old Female (symptoms for last 4 years)
My mother has a pituitary tumor and I know it can be hereditary. I've been experiencing symptoms such as:
Foot growth - have been a size 8 since puberty (for the last 8 years). Just within the last year or so my shoes I used to wear comfortably are hurting my toes. Got sized and I'm almost a size 9 now.
Facial changes - Can't seem to get anyone to take me seriously because it's not extreme, just enough to bother me horribly. I have added pictures to my journal from various times in the last 4 years. Please let me know if you feel these changes appear to be from acromegaly or if I'm dealing with something else possibly?
Chipping teeth - two of my teeth have chipped recently. I wasn't being hard on them.
Bad bad body odor and excess sweating - one of the first symptoms I noticed. I can shower and then do some light activity and my shirt will be soaked under the arms and have a horrible smell. I've had to throw some shirts away because it keeps happening and I can't get the smell out. Even when I wear deoderant it still comes through some.
Joint pain - in hips quite bad. Any form of high intenstiy cardio sets it off and I can barely walk for a couple days. I just have to ice ice ice. Sometimes my hips will bulge out they're so inflamed.
Diagnosed with a swollen liver - Non alcholic, in fact I've never had alcohol in my entire life. My liver is swollen and hurts when my doctor pushes on it. I've been on a clean diet and liver support supplement for over a year now. You're only supposed to be on that particular supp. for 6 months but my problem isn't going away.
Severe hormonal distubances - High androgens, low estrogen, and almost non existent progesterone. I was not even ovulating for a while there. I am on a natural supplement trying to balance them but I can tell it's not working entirely because sometimes I still don't ovulate, my periods are still irregular, and my skin breaks out like crazy.
Irregular periods - Sometimes a 27 day cycle, sometimes a 36 day cycle. I never know.
Weakness and electric feeling in hands and arms - randomly happens. Sometimes when I'm trying to use a flat iron on my hair, I have to stop for a while because my hands get so weak I can't clamp down hard enough to straighten.
Skin tags, probably 4 or 5.
Bloated after eating, past Gallbladder issues - I get bloated and feel sick when I eat. I eat a good diet and track what I eat. Can't afford to eat good or bad carbs. Fruit bloats my stomach. I'm 20 years old and I don't feel this is normal. I had issues with my gallbladder over a year ago.
Weight gain - Later half of 2015 I suddenly put on 30 lbs with no change in diet or exercise. Happened in a months time and I've had a very hard time losing it and keeping it off since. Everything I eat sticks to me like glue.
I went to an endocrinologist and after telling her my symptoms and showing her a couple photos, she got a concerned look on her face and agreed that testing needed to be done. I did a fasting IGF-1, Prolactin, and TSH.
IGF-1 came back in normal range 276 ng/mL (217 - 475)
Prolactin came back slightly elevated 30.7 ng/mL (2.8 - 26.0)
TSH came back normal but had gone up from 1.05 mU/L to 3.35 since last year. (normal is 0.35 - 4.94)
My doc told me my high prolactin was due to a medication that was in my records, but I never took the med. It was only prescribed to me years ago. After she told me to go back to my regular doctor and talk with him about "anxiety". I am beyond frustrated. Is it possible to have a pituitary tumor without elevated IGF-1 and only slightly elevated Prolactin? Should I push to have an MRI done?
If not acromegaly, what else could I be dealing with, any ideas? I'm really upset and desperate to get my life back. Please look at photos in my journal
Hello there! I just joined this support group & am excited to find others like me. I had surgery on Feb 7th of this year (2017). I didn't really notice my jaw protruding too much before surgery but it definitely was there. After surgery it still is and may even be a little worse? My smile seems like a "joker" smile. I have a underbite (had this before surgery) and can't even open a ketchup packet...