20 years old Female (symptoms for last 4 years)
My mother has a pituitary tumor and I know it can be hereditary. I've been experiencing symptoms such as:
Foot growth - have been a size 8 since puberty (for the last 8 years). Just within the last year or so my shoes I used to wear comfortably are hurting my toes. Got sized and I'm almost a size 9 now.
Facial changes - Can't seem to get anyone to take me seriously because it's not extreme, just enough to bother me horribly. I have added pictures to my journal from various times in the last 4 years. Please let me know if you feel these changes appear to be from acromegaly or if I'm dealing with something else possibly?
Chipping teeth - two of my teeth have chipped recently. I wasn't being hard on them.
Bad bad body odor and excess sweating - one of the first symptoms I noticed. I can shower and then do some light activity and my shirt will be soaked under the arms and have a horrible smell. I've had to throw some shirts away because it keeps happening and I can't get the smell out. Even when I wear deoderant it still comes through some.
Joint pain - in hips quite bad. Any form of high intenstiy cardio sets it off and I can barely walk for a couple days. I just have to ice ice ice. Sometimes my hips will bulge out they're so inflamed.
Diagnosed with a swollen liver - Non alcholic, in fact I've never had alcohol in my entire life. My liver is swollen and hurts when my doctor pushes on it. I've been on a clean diet and liver support supplement for over a year now. You're only supposed to be on that particular supp. for 6 months but my problem isn't going away.
Severe hormonal distubances - High androgens, low estrogen, and almost non existent progesterone. I was not even ovulating for a while there. I am on a natural supplement trying to balance them but I can tell it's not working entirely because sometimes I still don't ovulate, my periods are still irregular, and my skin breaks out like crazy.
Irregular periods - Sometimes a 27 day cycle, sometimes a 36 day cycle. I never know.
Weakness and electric feeling in hands and arms - randomly happens. Sometimes when I'm trying to use a flat iron on my hair, I have to stop for a while because my hands get so weak I can't clamp down hard enough to straighten.
Skin tags, probably 4 or 5.
Bloated after eating, past Gallbladder issues - I get bloated and feel sick when I eat. I eat a good diet and track what I eat. Can't afford to eat good or bad carbs. Fruit bloats my stomach. I'm 20 years old and I don't feel this is normal. I had issues with my gallbladder over a year ago.
Weight gain - Later half of 2015 I suddenly put on 30 lbs with no change in diet or exercise. Happened in a months time and I've had a very hard time losing it and keeping it off since. Everything I eat sticks to me like glue.
I went to an endocrinologist and after telling her my symptoms and showing her a couple photos, she got a concerned look on her face and agreed that testing needed to be done. I did a fasting IGF-1, Prolactin, and TSH.
IGF-1 came back in normal range 276 ng/mL (217 - 475)
Prolactin came back slightly elevated 30.7 ng/mL (2.8 - 26.0)
TSH came back normal but had gone up from 1.05 mU/L to 3.35 since last year. (normal is 0.35 - 4.94)
My doc told me my high prolactin was due to a medication that was in my records, but I never took the med. It was only prescribed to me years ago. After she told me to go back to my regular doctor and talk with him about "anxiety". I am beyond frustrated. Is it possible to have a pituitary tumor without elevated IGF-1 and only slightly elevated Prolactin? Should I push to have an MRI done?
If not acromegaly, what else could I be dealing with, any ideas? I'm really upset and desperate to get my life back. Please look at photos in my journal
I'm a 62 year old mother of a 27 year old who was diagnosed with Acromegaly in August of 2016. My son's pituitary tumor was removed in September of last year. Despite every treatment, my son never really got back to his "normal life". He even lost his job as an engineer due to prolonged disability. In the past 6 months, his headaches and neck pain got so severe that he would inject himself with...
So for the first time post surgery I got some dissapointing news today. I had surgery in March to remove a 1.5cm adenoma. Surgery was fine and at three month MRI there was no visible tumor remnant. My neuro declared me cured from his perspective. Two weeks ago I had a my IGF-1 and GH retested. Suppressed GH was 0.3, which is great. Nonsupressed was 2.3, which isn't. IGF-1 was 282...