Christo,Can you give us some more information on your high dose IV cortisone treatment. I have read a little about the treatment. How are your symptoms now, after thymectomy and IV treatment? Are you...

Tell us about your personal experience with Thymectomy as a treatment: Has it worked? Have you had any issues? Any recommendations or tips?

Research Article http://practicalneurology.com/neurologywire/2018/10/12/thymectomy-may-be-effective-only-for-some-forms-of-myasthenia-gravisAlthough randomized trials demonstrate that treatment with...

It will be 4 years since my major crisis of a hospital stay of weeks and respirator. Yesterday I am happy to say I drove to my neuro alone( 2 hours away) and drove home. Happy to hear I may be...

Hi, guys! It's me and my thymectomy anxiety again. :) I've met with the surgeon, then talked to my neuro again, and everybody seems to be in agreement that I should get the thymectomyexcept family...

Has anyone had the radiation therapy/treatments after having a thymectomy and if so please relay your thoughts on your decision. I've had a thymectomy, and they want to stipulate those cells they...

Seriously. Absent a mass, why do people put themselves through this trauma for so little chance of relief from myasthenic symptoms? Since being in this group - which I love, BTW - I have noted a...

Curt is a lesson for us. Get treatment and live life to its fullest.My treatment is cellcept and predisone and I had thymectomy. After 2 years I feel alive. I haven't worn my neck brace in a...

I think it is time to write our treatment plans so we can share with othersMine.....Thymectomy 2011, crisis March 2011 so had plasmapherisis,then 60 of prednisone, mestinon and cellcept. Now 2012...

Hi Everyone,I need the group's best cheerleaders to talk me off the ledge. My teenage son is scheduled for a trans-sternal thymectomy on July 18. All other methods of treatment aren't working on his...

I was supposed to do thymectomy back in April. But cancelled it until i got more info on it.my recent visit with doctor showed my bulbar muscles have weakened more, despite increasing prednisione and...

Hi everyone, Thank you to this group as I have spent the last few days reading various posts and comments. It has been very helpful but I wanted to ask your help with regards my 78 year old dad (who...

I just want to know how people cope with working and MG? I'm tired the majority of the time and even though my MG symptoms (droopy eyes, double vision/blurry, facial paralysis) have subsided I still...

edit Some answers Saturday, April 14, 2012So it's 9:15pm and the mg specialist just left my room. He wanted to examine me at the end of the day when mg symptoms wouls be at there worst. Smart man!He...

Hey guys, I'm just looking for a little input or experience as far as women who have become pregnant with MG. I was diagnosed in 2009 when I was 13. I had a thymectomy with no remission. Mestinon and...