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(also known as IPF)
Pirfenidone is an orally active small molecule drug that may inhibit collagen synthesis, down regulate production of multiple cytokines and block fibroblast proliferation and stimulation in response to cytokines. Pirfenidone has demonstrated activity in multiple fibrotic conditions, including those of the lung, kidney ... more at Wikipedia

Treatment Success Rate

Top 5 Communities
Condition Members Success
Pulmonary Fibrosis
6
50%
Overall, 50% (6 Members) find Pirfenidone helpful
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Pirfenidone Reviews

Show: for
Working / Worked
Mom is in the UCLA trials and is one of their STAR people doing very well on this!!! Still progressing, but, VERY slowly! What a blessing that drug is!
Working / Worked
this is for my hubby. stopped coughing, but gaining weight
Too Soon To Tell
I order some from overseas, My dad has pulmonary fibrosis and is on oxygen all the time. I hope this can control the advanced of this very unfortunate desease.
Too Soon To Tell
My SO has only taken a couple of rounds and only before bed. Anything that helps us both get a good night's sleep is helpful.
Too Soon To Tell
I did the Avonex dealie, too. I can't really see a huge difference but I seem to be progressing slower than most.
Too Soon To Tell
Just started meication trial.
Considering
but the doctors say I don't fall within the protocols so can't get it.
Not Working
Started on 60mg per day decreasing to 40 mg now. Blook sugar up. I don't think at this doseage it's helpful.
Somewhat Helpful
Too Soon To Tell
Showing 1 - 10 of 18 Reviews
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Discussions

  1. Discussion: IPF Effects
    Hi it has been a while since last i posted but i dont know if you want to blame a disease as much as the lack of oxygen and the problems that causes. ... [More]
  2. Discussion: IPF Effects
    I have a question. It's hard to tell what is related to what. I have the IPF, CHF and diabetes. So how can I tell what symptom is related to which... [More]
  3. Discussion: Congestive Heart Failure with IPF
    IPF is Idiopathic Pulmonary Fibrosis. The short version is my lungs have scaring and because of that, it affects my breathing. It's a progressive dise... [More]
  4. Discussion: Congestive Heart Failure with IPF
    I have pulmonary fibrosis and posted this in that support group also. I figure it could fit in either one. I was diagnosed with IPF in October of 2... [More]
  5. Discussion: IPF with Congestive Heart Failure
    I was diagnosed with IPF in October of 2012. I am 52 years old. I had a heart attack at 38 years old. Heart issues run in my family. My father died in... [More]