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Treatments
Most Popular | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Pirfenidone

(also known as IPF)
Pirfenidone is an orally active small molecule drug that may inhibit collagen synthesis, down regulate production of multiple cytokines and block fibroblast proliferation and stimulation in response to cytokines. Pirfenidone has demonstrated activity in multiple fibrotic conditions, including those of the lung, kidney ... more at Wikipedia

Treatment Success Rate

Top 5 Communities
Condition Members Success
Pulmonary Fibrosis
5
60%
Overall, 60% (5 Members) find Pirfenidone helpful
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Pirfenidone Reviews

Add to My Treatments Add a Review
Show: for
Working / Worked
KimbaJ (Pulmonary Fibrosis)
Mom is in the UCLA trials and is one of their STAR people doing very well on this!!! Still progressing, but, VERY slowly! What a blessing that drug is!
Working / Worked
keylina (Pulmonary Fibrosis)
this is for my hubby. stopped coughing, but gaining weight
Too Soon To Tell
carhian (Pulmonary Fibrosis)
I order some from overseas, My dad has pulmonary fibrosis and is on oxygen all the time. I hope this can control the advanced of this very unfortunate desease.
Too Soon To Tell
FrigidBrigid (Pulmonary Fibrosis)
My SO has only taken a couple of rounds and only before bed. Anything that helps us both get a good night's sleep is helpful.
Too Soon To Tell
oliewankanobe (Pulmonary Fibrosis)
I did the Avonex dealie, too. I can't really see a huge difference but I seem to be progressing slower than most.
Too Soon To Tell
serene (Pulmonary Fibrosis)
Just started meication trial.
Considering
JanO (Pulmonary Fibrosis)
but the doctors say I don't fall within the protocols so can't get it.
Not Working
gixxer (Pulmonary Fibrosis)
Started on 60mg per day decreasing to 40 mg now. Blook sugar up. I don't think at this doseage it's helpful.
Somewhat Helpful
2hannahherman (Pulmonary Fibrosis)
Too Soon To Tell
BobHarris52 (Pulmonary Fibrosis)
Showing 1 - 10 of 16 Reviews
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Discussions

  1. Discussion: Miracle Meds
    I want to try some supplements some directly related to my IPF but I had not heard of turmeric anything that works for inflamation should be good what... [More]
  2. Discussion: My Dad
    oh and there is an excellent forum for lung patients and specifically IPF patients....www.inspire.com there are a lot of people, both patients and... [More]
  3. Discussion: Wanda what did the dr say?
    Again only a problem for IPF patients. I think I was breathing better on just the small amount I took. Thanks again [More]
  4. Discussion: Wanda what did the dr say?
    Hi Wanda I Know you are always looking for natural ways to improve your condition and I did try l-arginine I believe it was helping but I was research... [More]
  5. Discussion: prednisone, imuran, NAC
    Please google the panther study for IPF and you can decide what you think I am very unhappy. [More]