still having meds seems to work as it has not grown any since having pamidronate
but pain is still the same.
Flu like symptoms the first 2 times then no issues.
Taking it monthly
Worked, but stopped because of fear of osteonecrosis. Have now resumed due to bone crumbling, but only once every three months,
The only treatment I have is Aredia
every 2 months with, fortunately, no side effects.
I have NO bone involement
used in place of zometa
for bone pain.
Rec'vg monthly with some neg but manageable SE.
my daughter as only had 1 lot done she has 2 have it every 3 months
1st yr did monthly infusions
2nd yr infusions every 3 months
didnt work. May be going on Alendronate
. Had about 17 breaks in youth including pelvis and ribs. Mostly wrists from falls. My son is 13. Has had only a few breaks although they did require surgery
because he had Pamidronate
from 3 years old to 8 years old and is back on it now. It works well for him. I was the first in my family to be diagnosed. Since then Dad one brother Dads Sister have all been diagnosed. Dads mum had Osteoporosis and his dad had Pagets disease.
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