hug malfunction
September 9, 2008 9:57am
To those of you who have hugged me and haven't gotten a response, DS is to blame (or maybe my computer?). I click to hugback, but my typing …
Allie101
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About Me
Allie101
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About Me
I am silly and loud, yet quiet and serious. I am a firm believer in learning things the hard way, because then you understand why you should not do some things. I love having fun with my friends.. whenever I am able to do so anyways. I have had fibromyalgia my whole life (although I never went to a dr who would diagnose me until last year) as well as having recent diagnosis of undifferentiated connective tissue disease (a disease that can progress into various diseases like lupus or RA), raynaud's phenomenon, and madelung's deformity. I try to take all this in stride. Life can throw you a lot of blows, but it's up to you to make it all worthwhile. I am currently a full-time student at a community college. I have an Associate's degree in liberal arts, and now I'm finishing an Associate's in Business Administration. I plan on transferring to UAH and majoring in Management, specializing in Human Resources. When I'm older and have plenty of money saved, I plan on starting my own business with my best friend. I live near our nation's capital (which is a pretty run down and dangerous city that I have been to far too many times) and I love politics. I'm a moderate Libertarian and extremely opinionated. Music is my number one passion in life. I was born to be a musician. I play flute, clarinet, piano, and saxophone. I'm also a published poet. Anyways, I suppose I have made this long enough! I hope this enlightens everyone on the complexity that is me!
I am silly and loud, yet quiet and serious. I am a firm believer in learning things the hard way, because then you understand why you should not do some things. I love having fun with my friends.. whenever I am able to do so anyways. I have had fibromyalgia my whole life (although I never went to a dr who would diagnose me until last year) as well as having recent diagnosis of undifferentiated connective tissue disease (a disease that can progress into various diseases like lupus or RA), raynaud's
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Interests
Writing, Playing instruments, Politics (I am very brave, lol), learning about other people's beliefs, trying to have insane amounts of fun with my friends.. I also am obsessed with chasing tornadoes and I want to go swimming with sharks. (I have a passion for marine biology as well..)
Writing, Playing instruments, Politics (I am very brave, lol), learning about other people's beliefs,
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Journal
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This entry is private
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This entry is private
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Hugbook
Chocolate
ALLIE!!!!! How are you doing sweetie! Drop me a line and let me know what's up. Blessings!
Rainbow
I'm not doing too badly Ms. Allie, nice to hear from you. Sorry you're having to keep to such a heavy load of meds....let's keep our fingers crossed for an improvement and less pills rattling around that body of yours! I keep my meds to a minimum, but I do pay for it....I'm ramping up my exercises a little and doing extra stretches....I will prevail!!! love, light and peace 'til we "talk" again....
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Flower
It's been a while, hope all is bright and well in your world. love, light and peace.
Present
WISHING YOU A BLESSED CHRISTMAS AND NEW YEAR
Snowman
Spreading Christmas cheer!! Yes I know its early but it is my favorite time of year. The best thing in the world happened, Jesus' birth!! I pray you are doing well and not hurting to bad. Know that I pray for you constantly. We are here for you to help you through the good and bad times. Please don't be a stranger. Know that we all still care and miss you when you are away!
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Photos
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Support Groups
Close Fibromyalgia
I've been dx'd with fibromyalgia for a year, but I've showed signs of it since I was 5yrs old! Last year, I was also told I have undifferentiated connective tissue disease and it is progressing toward systemic lupus..
Treatments
- Ambien Working / Worked
- I had been on Ambien CR 12.5mg, but I ran out of samples (ins. doesn't cover it). Now I have 2 weeks worth of Ambien 10mg for my PTSD.
- Aqua Therapy Working / Worked
- My jacuzzi was helping until my ER ordeal and I wasn't allowed to have baths. I'm looking forward to using it again!!
- Cymbalta Somewhat Helpful
- My dr gives me samples because I can't afford it. I'm on 30mg, but with my anxiety from the PTSD I think I need it upped to 60mg so it can help with both my pain and my depression/anxiety
- Elavil Working / Worked
- This helped at first, then stopped. I probably needed the dosage upped, but it made me gain 40 lbs so I switched back to cymbalta
- Flexeril Working / Worked
- This is really good for the nighttime muscle spasms I get, but every few months I've been having to get it upped and I think I'm there again..
- Heat Working / Worked
- This is the one thing that I can always depend on helping!!
- Neurontin Working / Worked
- Just upped this and I love it. My pain level is a lot more stable now.
- Ultram Working / Worked
- starting to take 150mg a day (50mg 3x a day) like it's prescribed since I'm in a flare. Usually I try not to take it though even though it helps.
- Yoga Working / Worked
- This really helped while I was doing it every week, but I haven't been doing it lately. I'm going to sign up for a yogilates class though.. I'm certain that will help with the pain and the weight gain!
- Lidoderm Working / Worked
- YAY! SOMETHING HELPS MY LOW BACK PAIN!!!
Close Chronic Pain
I suffer from chronic pain due to FMS and undifferentiated connective tissue disease.
Treatments
- Anti-Inflammatory Diet Too Soon to Tell
- Cymbalta Working / Worked
- Flexeril Working / Worked
- Heat Working / Worked
- Marijuana Considering
- Meditation Working / Worked
- Neurontin Working / Worked
- Arthrotec Too Soon to Tell
- Lidoderm Working / Worked
Open Lupus
I don't actually have SLE, but I have undifferentiated connective tissue disease and that is progressing towards SLE. I'm hoping to learn more about this so I can know what to expect..
Treatments
- Anti-Inflammatory Diet Too Soon to Tell
- Medrol Working / Worked
- I was put on a medrol dose pack for a week and I was nearly pain free! I was so sad to have to stop taking it :(
- Plaquenil Too Soon to Tell
- I've been taking this for 3 months and I can't tell if it's working with stopping the progression..
- Prednisone Somewhat Helpful
- the dr gave me a low dose which helped a little, but not nearly enough. I hope he gives me more soon.. my inflammation is insane!
- Arthrotec Too Soon to Tell
- Just got this today for my knee pain from the arthritis
Open Anemia
I developed severe anemia after bursting a blood vessel and losing about 3 liters of blood. I'm finally getting some color to my skin, but I still feel weak.
Treatments
- Dietary Modification Working / Worked
- I have to drink a whole lot more and make sure I drink citrus with the iron. I also have to eat more fiber now..
- Iron Too Soon to Tell
- I'm taking it twice a day. I hate having to always worry about getting constipated though (TMI, right? lol). I take it with food and a lot of orange juice.
Open Post-Traumatic Stress Disorder
On Saturday, March 15th, I was rushed to the ER. The paramedics said that by the time they got me to the ER, I had already lost over 2 liters of blood. They described it as an ocean of blood. I ended up flatlining in the OR! Ever since, I've been having all the symptoms of PTSD. I'm going to see a dr for the diagnosis and plan though. For now, I feel like there's no hope in life.
Treatments
- Music Considering
- Psychotherapy Considering
- Reading Somewhat Helpful
- it's nice to take myself to another world sometimes. they're better than the flashbacks and the nightmares.
- Talking Working / Worked
- talking about it (in between the bursts of tears) with my mom was what made me really realize something was wrong with me and that I needed to seek professional help
- Cymbalta Working / Worked
- I was already on Cymbalta for my fibromyalgia but I had the dosage upped for my anxiety from the trauma.
Open Sports Injuries
I tore my triangular fibrocartilage complex as well as a tendon and ligament in my wrist from color guard my sophomore year of high school. I already had Madelung's deformity so it triggered a large amount of inflammation as well.. (oh joy)
Treatments
- Heat Working / Worked
- I try to heat my wrist to keep it from getting too stiff
- Ice Pack Working / Worked
- This works sooo well when my wrist swells up or when I reinjure it (which happens all too much)
- Naproxen Not Working
- I think I got immune to this, but it used to help..
- Physical Therapy Not Working
- My doctor gave me an exercise band thing, and it just made my wrist worse. I don't see that doctor anymore.
- Cortisone (Injection) Working / Worked
- Assuming I dont end up overworking it this is the only thing that guarantees my wrist be painfree!
Open Diets & Weight Maintenance
I've always struggled with my weight due to genetics, but last year I gained 45 pounds from my medicine. I'm at high risk of diabetes, plus the extra weight increases my pain levels. My goal was to lose 50 pounds, and so far I've lost 15 but I've plateaued.
Treatments
- Eating Healthier Foods Working / Worked
- I'm on a low fat, low sugar, low sodium diet. I'm also mostly vegetarian and eat lots of fruit and salads.
- Eat Less Working / Worked
- I'm eating smaller meals throughout the day.
- Physical Exercise Too Soon to Tell
- Pilates Too Soon to Tell
- Green Tea Too Soon to Tell
- I drink this all the time and now I found some tea extract fat burner pills. Im starting today 71808 so well see how that goes.
Open Self-Injury
I used to cut and burn myself a lot. It's been awhile since I've done it, but now I have urges again because someone from the past is opening old wounds.
Treatments
Open Codependency
No matter how much I try to tell myself not to, I always end up doing anything to keep my boyfriends with me. Even after they hurt me and leave, I cling to them and the hope they will come back. I wish I wouldn't depend on them to make me feel "whole". I'm slowly learning to stand on my own..
Treatments
Open Anxiety
I used to have some minor anxiety problems until a few months ago when I almost died. That triggered major anxiety, but now I seem to have stabled out due to meds.
Treatments
- Breathwork Somewhat Helpful
- Meditation Working / Worked
- Positive Thinking Working / Worked
- Cymbalta Working / Worked
- 60 mgs helps my fibro pain and my anxiety.
Open Insomnia
My insurance won't cover my ambien so I have to use samples, but my dr never gives me enough. I always end up not sleeping right for 2 months before I can get more. It's so freaking annoying!
Treatments
- Ambien Working / Worked
- Ambien CR works when I actually have it
- Lavender Considering
- Lunesta Not Working
- Insurance wants me to take this, but it doesn't do anything for me.
- Meditation Working / Worked
- Music Somewhat Helpful
- I put on classical or relaxation cds to help me feel sleepy.
- Reading Somewhat Helpful
- Sometimes I get so into the book that I don't want to try to sleep!
- Physical Exercise Working / Worked
- I sleep better when I exercise in the morning.
Open Bereavement
I lost my grandmommy to emphezema and diabetes, right after I lost my pop-pop to lymphoma, then I lost a friend to suicide, a close family friend to lymphoma, and this past year I lost my other grandmother to Alzheimers.
Treatments
- Crying Somewhat Helpful
- Getting Angry Somewhat Helpful
- Keeping Busy Somewhat Helpful
- Music Working / Worked
- Pets Working / Worked
- Poetry Working / Worked
- Remembering Somewhat Helpful
- Support from Friends & Family Somewhat Helpful
- Talking Somewhat Helpful
- Time Working / Worked
Open Sciatica
I haven't been diagnosed yet, but when I get back spasms I get a shooting pain into my hip and down my leg! It hurts so incredibly bad!
Open Vegetarians & Vegans
I've recently decided to work my way to being vegan as a way to be healthier and not support the animal cruelty, but it's hard because I love dairy so much! I also have iron deficienct anemia so I know I have to be careful about my diet.
Treatments
Open Myofascial Pain Syndrome
I've had mps along with fms ever since I can remember. I feel like my mps is a lot worse than the fibro, but it tends to come in waves (flares).
Treatments
Open Time Management
I'm a full-time student in college and I'm horrible with my time management! I'm a notorious procrastinator, but I'm hoping to change that.
