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Journal Entry for September 8, 2007 Mood
Saturday, September 8, 2007
Well, I have finally shared my diagnosis with my children (they are all adults)...they were super...asked intelligent questions and gave me lots of hugs and kisses...I'm glad that part is over.  Now I will get back to living my life just as I did prior to diagnosis.  I am truly blessed to have such a wonderful and supportive family.
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  1. laurikis

    Well bwilli, this is certainly a big day indeed. I'm so glad to hear it went well. My husband who was diagnosed a few months ago only recently accepted it himself and has just shared the news with his siblings. As with your kids, they were super. In the overall scheme of things I believe it has helped him immensely with his own private struggle and, as you say, enabled him to get back to living his normal pre-PD dx life. I get so sad when I read posts from others here saying their families are resentful or non-sympathetic.

    I have a feeling you'll sleep much better tonight. Best of luck to you bwilli. Thanks for sharing.


    laurikis

Journal Entry for August 29, 2007 Mood
Wednesday, August 29, 2007
Anyway, I'm having trouble sharing my diagnosis.  I've only told my husband, adult daughter that lives with us, and my other adult daughter.  I still need to tell other family.  I don't know if I'll tell anyone else.   Is  it their business???  I work at home, so co-workers don't see the symptoms.  Do they need to know??  And anyone who sees the symptoms....do they need to know??  OK...counter thoughts.....am I wronging the PD community?  We're not bad.....why shouldn't I share...I think its a factor of my personal privacy
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  1. SLWLadybug

    Me again... I think you need to do what's right for you. Some people I know, know that I have it. These are closer friends and family. For one reason, they 'see' it, so this way they don't have to wonder "Do I make you nervous?", as was asked by a neighbor. Other friends don't know. There's no point. If I ever felt a need to share I would, but for now, it doesn't matter. My opinion: Do what's right for you. Maybe just a few knowing for now is what's right and later you may want to tell others. Have a great evening.


    SLWLadybug

  2. craftycat

    Oh Goodness! I had the same problem about telling people about my DX. My husband and I have not told his family, yet. They live in different states, anyway, and we aren't that close. But, I learned to readily acknowledge to everyone else that I have Parkinsons, whenever someone sees me stumbling around, or stuttering, or trembling, etc. By doing this, they don't have to wonder what's wrong with me and I do want people to know about Parkinsons. The more that people can actually see the results of it in a person's life, perhaps the more people will get involved in the fight for a cure. It's all personal, but that's how I feel. My best to you.


    craftycat

Journal Entry for August 29, 2007 Mood
Wednesday, August 29, 2007
Do the rest of you have trouble typing???   Its so frustrating....a skill I used to be so good at....now, I hate to write anything in my journal because my fingers don't keep up with my thoughts.
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  1. SLWLadybug

    Yes!!!!!!!!!! It is indeed frustrating. It's like you're brain is going a mile a minute and your fingers have decided to pull off at the rest stop!!!


    SLWLadybug

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