Horrible
September 6, 2008 12:58pm
I thought "teal" might be a nice choice for today's entry. I know I haven't been on in a long time, and I'm planning on …
sweetshaygirl
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About Me
sweetshaygirl
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About Me
I am disabled due to lupus, probably due to a miscarriage I had when I was twenty. I am really into my church, my family, reading, writing (I'm soon to be a published writer), acting, and I'm working on finishing my degree through a correspondence college. I am double-majoring in pre-seminary and missions. I hope someday to teach at the college level, if I live that long. As for my personal life, I love things like angels, music boxes, and teddy bears.
I am disabled due to lupus, probably due to a miscarriage I had when I was twenty. I am really into my church, my family, reading, writing (I'm soon to be a published writer), acting, and I'm working on finishing my degree through a correspondence college. I am double-majoring in pre-seminary and missions. I hope someday to teach at the college level, if I live that long. As for my personal life, I love things like angels, music boxes, and teddy bears.
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Interests
I am very involved in my church, I like Lifetime movies (especially the ones about the crazy people--my five favorite words are "Based On A True Story, " and my mom is worse than me), my favorite TV show is "Monk, " simply because it is so well written!! I love writing--I am working on a series of children's books that I hope will be published (a famous singer/songwriter and my college writing prof. both said they can be published, and have hooked me up with an agent--we'll see how that goes!!). I have hundreds of books...I love to read. My baby sister is 18 now, and I've helped raise her. She is the light of my eyes.
I am very involved in my church, I like Lifetime movies (especially the ones about the crazy people--my
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Recent Activity
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Journal
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Having A Rough Time
July 17, 2008 6:28pm
I've been having a hard time lately...a lot of pain, but I try to keep my eyes turned upward to God's glorious Face. Praise His Name, …
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Feeling Horrible Today!!
June 13, 2008 3:26pm
AAAAIIIIIGGGHHHH!!!! I am in so much pain today; I feel like I can't stand it, and I can't stand not knowing if i have cancer or not …
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Still No Word
June 9, 2008 2:23pm
Still no word about this potential cancer....and I'm worried because of how bad my bones hurt. Could this be bone cancer, because that is …
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Difficult Life
June 7, 2008 2:52pm
I'm so worried over this potential cancer. It's all I can think about, when I'm not struggling to breathe, that is!! I feel …
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Hugbook
Hug
May God bless you and keep you in perfect peace. Here are some encouraging healing bible verses to uplift you. Remember, faith moves mountains and you can get through anything in the name of Jesus. John 3:16 For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life. Exodus 23:25 And ye shall serve the LORD your God, and he shall bless thy bread, and thy water; and I will take sickness away from the midst of thee. Psalms 6:2 Have mercy upon me, O LORD; for I am weak: O LORD, heal me; for my bones are vexed. Psalm 103:3-4 Who forgiveth all thine iniquities; who healeth all thy diseases; Who redeemeth thy life from destruction; who crowneth thee with lovingkindness and tender mercies. Isaiah 53:5 But he was wounded for our transgressions, he was bruised for our iniquities: the chastisement of our peace was upon him; and with his stripes we are healed. Matthew 4:23 And Jesus went about all Galilee, teaching in their synagogues, and preaching the gospel of the kingdom, and healing all manner of sickness and all manner of disease among the people. Jeremiah 17:14 Heal me, O LORD, and I shall be healed; save me, and I shall be saved: for thou art my praise. Matthew 8:14-17 And when Jesus was come into Peter's house, he saw his wife's mother laid, and sick of a fever. And he touched her hand, and the fever left her: and she arose, and ministered unto them. When the even was come, they brought unto him many that were possessed with devils: and he cast out the spirits with his word, and healed all that were sick: That it might be fulfilled which was spoken by Esaias the prophet, saying, Himself took our infirmities, and bare our sicknesses.
Prayer
HI THERE.. JUST STOPPED BY TO TELL YOU I READ YOUR JOURNAL ENTRY AND I AM PRAYING FOR YOU... I HAVE LSO BEEN TOLD I AM DYING AND NO LONGER BELIEVE THE DOCTORS..DONT GIVE UP.. KEEP ON WRITING AND BREATHING..AND LIVING! ONLY GOD KNOWS WHEN ITS OVER.HUGS HELYN
Prayer
You are precious in His sight .. and in mine. I'll be praying for you every day. Always here for you if you want to talk, Nancy
Prayer
Dear Shannon, God bless you to stay strong. I will keep you in my prayers. Susan
Present
YOU HAVE SO MANY OF US HERE AT DS WHO TRULY LOVE YOU AND ARE PRAYING FOR YA! ANYTIME YOU NEED A FRIEND I'M HERE FOR YA. YOU ARE NOT ALONE! REMEMBER THAT OK SWEETIE. LOVE YA BUNCHES BLONDIE, NIECY. http://www.youtube.com/v/ceQYClKn4...
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Photos
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Support Groups
Close Infertility
Type: Other Uterine IssuesI had a miscarriage at the age of twenty, which nearly caused a nervous breakdown seven years later when finally I told someone. That was such a relief!! I had to have a radical hysterectomy when I was 31, and it is difficult for me to get over the fact that I will never carry a child in my womb. I am hoping I will find the hope and help I need here to get over this to get over this crushing disappointment in my life.
Close Lupus
I have a severe and complicated case of lupus. It affects my central nervous system, digestive system, heart, lungs, and skin. I have found the people of this group to be wonderful, and I am so grateful to have found this site. The support everyone gives each other here buoys me up through many a bad day.
Treatments
- Celebrex Working / Worked
- Allergic Reaction...messed up my stomach
- Support from Friends & Family Working / Worked
- I have a great church family, even though it is small. Everyone understands about my illness, and they are so supportive. I can have a seizure while a church, and no one gets upset, and they never embarrass me. I love those people dearly.
- Support from Friends & Family Working / Worked
- My family is tremendously supportive. I had to come home from college at the age of 21 when I got sick, and they have never complained about having to take care of me. Their names should be honored before all the world.
- Medrol Working / Worked
- take a lot
- Plaquenil Working / Worked
- take twice a day
- Prednisone Working / Worked
- am currently using for treatment
Open Bone Cancer
Hi...I'm Shannon. I also have a really complicated case of lupus that makes my life...shall we say interesting? A couple of months ago I had a positive test for bone cancer, and I'm having really severe pain in my bones. The doctor doesn't think it's that serious, and I don't know if I should get a second opinion or not. All I know is that I'm in a lot of pain and the pain pill they are giving me for my lupus are even TOUCHING this bone pain. I'm really scared and I don't know what to do.
Treatments
- Support from Friends & Family Working / Worked
- Lots of pain, waking up in the night, lidoderm patches which I seem to be allergic to.
Open MRSA
I found out that I have MRSA about two weeks ago. I've been through the Infusion treatment, but it looks like it's coming back. I am very discouraged and would appreciate the support offered by your group. Thank you.
Treatments
- Bactrim DS Working / Worked
- has worked to a certain extent
- Biaxin Working / Worked
- works the best of all my antibiotics
- Vancomycin Working / Worked
- was on a nearly ten day infusion treatment of that...it was very difficult and very tiring.
- Support from Friends & Family Working / Worked
- My family has really been there for me. I couldn't have made it without their love and support.
Open Skin Cancer
Type: Malignant MelanomaIt looks as though I am in the early stages of melanoma. I have received a lot of help at this site and would like to join this group.
Open Crohn's Disease & Ulcerative Colitis
I have been dealing with lupus for many years, and it has been affecting my digestive system for about eight years now. I was diagnosed with Crohn's Disease while in the hospital to have my stomach removed in 2005. It's such a miserable disease, but in light of everything I have to deal with, not the worst thing.
Treatments
- Avoid Certain Foods / Chemicals Working / Worked
- Avoiding certain foods, like citrus, has helped a lot.
- Prednisone Working / Worked
- I hate the side effects of prednisone, and am on it often for lupus too.
- Surgery Working / Worked
- I have had many surgeries for my gastro. system.
- Faith Working / Worked
- I could not make it without Christ by my side and in my heart
Open Chronic Pain
Lupus has ripped apart my body, and has inflicted terrible pain throughout this mortal clay. I would very much like to join this support group.
Treatments
- Acupressure Working / Worked
- didn't help
- Chiropractic Adjustment Working / Worked
- helps a lot
- Flexeril Working / Worked
- used until they are no longer effective
- Heat Working / Worked
- helps a lot
- Lidoderm Working / Worked
- helps; I use it quite often
- Morphine Working / Worked
- helps a lot
- Neurontin Working / Worked
- shut down my kidneys
- Oxycodone Working / Worked
- allergic
- Topamax Working / Worked
- really helps my headaches!
- Faith Working / Worked
Open Epilepsy & Seizures
I have been epileptic since the age of nine and suffer from at least one seizure a month.
Treatments
- Depakote Working / Worked
- allergic
- Dilantin Working / Worked
- affected my liver; allergice
- Klonopin Working / Worked
- works very well!! does help to control seizures to some degree
- Neurontin Working / Worked
- allergic
- Topamax Working / Worked
- works very well
- Faith Working / Worked
- Faith Working / Worked
Open Bereavement
I suffered a miscarriage when I was twenty and just have had a really hard time getting past it.
Treatments
- Crying Working / Worked
- Getting Angry Working / Worked
- Grief Counseling Working / Worked
- I've been in counselling for five years now
- Helping Others Working / Worked
- It does help me get my mind off myself to work with others who need it
- Keeping Busy Working / Worked
- Music Working / Worked
- Pets Working / Worked
- Poetry Working / Worked
- Prayer Working / Worked
- Reading Working / Worked
- Remembering Working / Worked
- Support from Friends & Family Working / Worked
- Support Groups Working / Worked
- Talking Working / Worked
- Time Working / Worked
- Faith Working / Worked
