Journal

316 days of LDN

139 Days of Neprinol

I just wanted to put in a quick update.  I'm 40 days away from hitting my sixth month.  I'm unsure if it's the end of the month that I'll be feeling the total effects of Neprinol or if it's in the beginning.  If it's the end of the sixth month then I'm 70 days away...........

Neprinol works great I must say.  I'm happy as it is, as I feel right now.  I don't feel like I have RA anymore...except that I still have some stiffness and swelling in my left hand and forearm.  Interestingly enough, it was my left forearm that was the first injury, months before RA came along.  So I'm intrigued about the theory of healing backwords...that your latest symptoms go away first and your first symptoms go away last.  That really does seem to be the case for me and that's a theory when it comes to "natural healing".

I feel great enough that I no longer take pain medications........and I forget a lot of my supplements.  I haven't been following a good diet....I've been really bad.  That's how well Neprinol works, is even when I'm eating terrible, I still seem to feel pretty good, but I know I'd feel that much better if I just ate well, oh and exercized too!  Oh well...........

We'll see how things go........70 more days to go.........!

290 Days of LDN

113 Days of Neprinol

It's a new year, crazy!

I suppose I should write something inspiring but I don't really feel all that up to it.  I guess I could talk about a recent Hollywood party I went to....but it wasn't all that intersting.  Or I could talk about last night at the Geisha House, but Nah.  I just feel like being boring today.

I've also been feeling like I have less of a need for this support group lately.  Sure, I'll still continue to update my journal just so I can keep a very accruate description of my RA, medications, etc.

I use to come to DS for mainly sanity.  I felt like it was my home, a place where I could relate to other's pain and try to encourage others and get encourage to push myself forward another day.

But ever since things happened at DS that were like a scene from "Gossip Girl", though I never watch it.....but I assume by the title that drama was the key interest of the program, I've found I have even less of a reason to check in to this site.  I had formed a group of friends and they were interested in my experimental ways and I was interested in keeping up my friendly community.  But when so many left and I have seemed to have magically gotten better, I have less and less of a need except during an occassional flare and even those are hardly all that bad anymore.

I still have issues with my wrists and minor issues with my fingers.  But I'm still only at four months with Neprinol and I'm hoping that at six months I will have reached full remission.  We'll see.  I know some people who reach remmission still have some minor things that never go away.  In fact, maybe I am in remission.  I wake up, I can make a fist.  It's not the tightest fist in the world.....I have three fingers total (counting both hands) that can't pinch into my palm tightly.  I rarely anymore have feet pain which use to be one of the last symptoms I had.  I still have some slight amount of swelling in one of the joints on my left foot.  And my wrists are still swollen, mainly my left.   I still think I should have had a prednisone shot years ago when I asked because my left wrist may never be normal again....but we'll see.

I get a little frustrated reading the threads these days.  I feel more like I'm probably annoying people rather than helping.  I just don't believe in the RA protocol.  Methotrexate makes you tired and has so many side effects I wonder why anyone trusts that their doctor has their best interest at heart.  And all the other drugs have equally if not more so issues, Enbrel topping the most fatalities after the latest clinical trial.  I found it odd that someone called me brave for trying my methods, when the reality is, I couldn't have imagined that I would feel this great.  I do have to say though, my methods aren't for everyone.  I take a lot of supplements and I have to pay attention to what my body needs.  I also need to be aware of certain things like vitamin E for instance, can store up in your system so I make sure not to let that happen with all the extra vitamins I take.

I'm also surprised that no one has jumped on the Neprinol band wagon even though it's expensive.  I'm equally surprised that people don't take my advice and try antibiotics with LDN.  If anyone looked up either, they would learn that their bodies would have a much better chance of feeling good again.  All I know is, I was searching high and low for any alternative that was less scary that mtx and strangely, I had to find the info all on my own.  There was one kind person that posted LDN on an RA thread long ago.  They had RA and MS.  Crazy.  I am very thankful to whomever that angel was.  But since, I have posted quite a few times now my alternative choice and frankly I'm surprised that no one seems intersted.  Oh well.   I equally feel bad that I'm loosing interest in trying for the few newcomers here and there that might actually want to hear my treatments.

Oh well.  It's a new year and I think more than anything, I'm hopeful for positive change that improves my quality of life.  I hope everyone is doing well! 

260 Days of LDN

83 Days of Neprinol

60 Days of liquid glucosamine/chondorine

    I'm finally feeling up to speed again.  It had taken a long while to get Neprinol and I was basically two weeks behind on my daily regimine.  Trying to stretch the pills out didn't seem to help much, which is why I say it was a two week span of getting behind.

    When I finally did get back on track with the pills, I got the stomach flu.  In fact one of the days I took no pills at all because my stomach hurt too much.  There were a couple of days that I took less than normal and skipped my regular supplements.  Luckily the stomach flu has finally come to fully pass.  There were moments I would get random pain on days I thought it was over.

    The interesting thing is what I learned about viruses.  Apparently the symptoms of a virus are sort of like an allergic reaction.  In fact, colds are the same thing.  This is why some people can be carriers and not show any symptoms.  Their body simply doesn't react.  Because I have RA or possibly sarcoid arthritis, my body developed rashes and my RA symptoms got worse when I had the stomach flu.  Interesting, isn't it?

     The big fish I brought in to work went away.  It's complicated, but that's just how the industry is sometimes.  So it's important if possible, that I bring something new in.

    Well that's it for now.  I'm at a loss of words, but I wanted to update my medical status, because this is my way of keeping good records on what works and what doesn't.

I  hope everyone is doing great!