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  • About Me

    Image of kristinea

    kristinea

    Female, 45
    Arnold, MD, USA
    Member since August 19, 2007

    • About Me

      Massage Therapist with Chronic lyme disease that gave me Fibromyalgia. I was misdiagnosed for 2.5 yrs, so I'm having a really tough time recovering. I've been on oral antibiotics for 8 mos and barely noticed any difference. I still have constant pain through out my body, anxiety and all kinds of cognitive problems. I'm starting IV therapy soon and hope and pray that this works. This is the hardest thing I've ever had to deal with and I commend every person with a chronic illness that stays positive and makes it thru each day. I haven't worked since 12/07, so finances are a major problem. I'm trying to stay positive and believe that there is some reason that this has happened. That there will be a silver lining to my cloud.

      Massage Therapist with Chronic lyme disease that gave me Fibromyalgia. I was misdiagnosed for 2.5 yrs, so I'm having a really tough time recovering. I've been on oral antibiotics for 8 mos and barely noticed any difference. I still have constant pain through out my body, anxiety and all kinds of cognitive problems. I'm starting IV therapy soon and hope and pray that this works. This is the hardest thing I've ever had to deal with and I commend every person with a chronic illness that stays positive

    • Interests

      I used to be very athletic. Running, yoga, pilates, aerobics, dancing hiking. I was happy as long as I was moving. Of course, that's real hard to do now. I try to do some exercises and walk as much as I can. Seems like it's getting harder and harder. I also love to read and learn about alternative health., being a massage therapist. That's hard to now. I can read for 15 minutes and then have competely forgotten what I just read. So now, DS, sleep, trying to stay positive and getting thru each day are my interests. I do believe I will heal and be able to do some, if not all the things I used to.

      I used to be very athletic. Running, yoga, pilates, aerobics, dancing hiking. I was happy as long as

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Plugging Along

      Mood September 22, 2008 11:47am

      I'm still just plugging along.  I've been off antibiotics for a couple months, preparing to do the "pulse therapy" as …

    • Reality Bites

      Mood July 4, 2008 11:30am

      S, it's been forever since I've written in this journal. I'm usually too tired, even though I know it's good to get things out. …
    • Journal Entry for December 17, 2007

      Mood December 17, 2007 11:35am

      My pain just seems to be getting worse and worse, especially in my joints. My pain management doc suggested I might have lyme disease even though I …
    • Journal Entry for October 31, 2007

      Mood October 31, 2007 9:56am

      I'm sick of doctors and trying new meds and everything associated with this crappy disease. I can't take antidrpressants, I've tried like …
    • Journal Entry for September 28, 2007

      Mood September 28, 2007 9:27am

      okay, so much for the everyday journaling, but a couple times a week will work.Tell yu the truth I just don't like to think about how I feeling …

    Read Journal

  • Hugbook

    Give kristinea a hug



    • Hug

      From sadalone February 15

      hi had question my counslor had a babby she told me to get a message for the weeks shes out will it help with my ptsd

    • Hug

      From dairyqeen January 28

      i am so sorry for your pain i was diagnosised with fibromyalgia over two years ago and i know what you mean life is dramatically different i dont know from day to day what i will be able to do i cant make any plans i was reading your list of medicine i take cymbalta which has helped some i dont know if you have tried lyrica it might help but i also wanted to suggest a pain patch called duragesic or fenantyl patch it does help me and it stays on for three days and then you add another patch but i am also on ultram and i now take the three hundred and it helps so but i have been told by my rhematologist that it tough to treat because as you stated our bodies can build immunities to certain med but i have also learned that no matter what med i take nothing totally takes away the pain and the fatigue i feel makes me feel ninety years old i pray that your pain will go away and i also pray for your finanaces have you tried for you disability since you havent work if your dr will back you its a good chance that you will eventually be approved but i try to connect with those that have fibro because i dont think anyone else can truly understand how bad it really is

    • Hug

      From dairyqeen January 28

    • Hug

      From BertS October 30, 2008

      Thanks for your message. Keep hangin in there. Your friend Bert.

    • I’m With You

      From BertS October 27, 2008

      I'M with you. Lots of Luck to you. Bert S.

    Read Hugbook

  • Goals

    Progress

    0 %

    Goal End Date is Mar 13, 08 621 days ago.
    Distance (miles)
    18
  • Support Groups

    • Close Fibromyalgia

      massagge therapist with fibro. for almost 2 years and finaly deciding I'll have to give up my practice.Recently found out I have lyme disease.

      Treatments

      5-HTP Not Working
      didn't do anything
      Acupuncture Not Working
      hurt too much without enough good results
      Cymbalta Not Working
      too many side effects
      Effexor Not Working
      too many side effects
      Morphine Working / Worked
      works okay, I think I need a higher dosage so I don't get pain in the middle of the night
      Ultram Working / Worked
      Only thing that seems to work, although I'm building up a tolerance.
      Zanaflex Somewhat Helpful
      Takes some of the edge off when other meds aren't enough
    • Close Lyme Disease

      just dx with lyme. Told I had fibromyalgia for the last 2 yrs. I a massage therapist that is still, but barely working. I'm hoping the doc will get me feeling better over the next few months

      Treatments

      Doxycycline Working / Worked
      just started
      Tramadol Working / Worked
      Worked but think I reached tolerance so now its not working as well.
      Oxycodone Working / Worked
      helps but I think I need as higher dosage since the cold weather has hit.
  • Groups

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