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  • Image of aposey

    About Me

    Not to be on the "pity-potty, " but I'm in SO MUCH pain every waking moment; I have these AWFUL headaches, muscle spasms throughout my whole body from my dystonia, & I cannot take care of myself, but I AM going to start getting help, soon. I live alone at present. I cannot drive at the present, but I just received a medication from Barbados (that my neurologist wrote me a prescription for) that will stop the movements enough for me to take care of myself, & to get "behind the wheel, " again. It takes about a week to start working. I do love humor, and I love to communicate with others on the computer. My GAD has really gotten the better of me, and the Lexapro I've been on for it for nearly two years "cannot" (according to my history, & to my pdoc) be changed. I'm suicidal without it, but I'm hypomanic, etceteras, on it. I was diagnosed bipolar II when I was 21, but now I switch back and forth between 1 & 11.

    Interests

    theater; acting; drama; writing; reading; education; children; nature; psychology; singing (although I "can't carry a tune"); music;honesty;recovery;politics;liberalism;nature nature conservation; feminism; humor; helping others, whenever I can, and in whatever way I can; animals.

  • Recent Activity

    Saturday

    • aposey gave Meekacat a little love 5:10pm

      Hi, Sandra! So sorry you must battle that Lupus all of the time; I wish I could do something to take…  

    November 22

    November 20

    • aposey gave markglaser a hug 6:27am

      HI, MARK, I'M IN STAGE 3 OF RENAL FAILURE, & AM HAVING MY 6 MONTH CHECK-UP WITH MY NEUPHROLOGIST ON DEC.…  

    November 19

    • aposey gave Meekacat a prayer 4:42pm

      You are in my thoughts, & all of my prayers right now. I knew something was wrong since I haven't heard…  
    • aposey gave dgs a hug 9:16am

      Thank you SO MUCH for extending to me your understanding, patience, compassion, & forgiveness; what more…  
  • Journal

    Read Journal

  • Hugbook

    Give aposey a hug



    • Little Love

      From Meekacat Monday

      WOW...Excellent, huh! AMEN!!! Love you Alexis! xxxx Sandra oooooo

    • Hug

      From Meekacat Saturday

      Dang computers...they always are rearing their ugly head...but sure don't want to live without them. I'd give up my car before my computer. LOL!!!!

    • Hug

      From Meekacat Friday

      Hey Alexis...how was your Thanksgiving? Our's was terrific...nnow we are busy decorating for Christmas! oxoxoxo Sandra

    • Superhero Status

      From Meekacat November 23

      Ali, thank you for always remembering me. I know I have not beenable to communicate as much. But you remain my loyal friend, and I am thankful for that. I woke up to take some pain meds, back to bed to rest. YOUARE MY HERO SWEETIE! oxox Sandra

    • Cheers

      From dgs November 22

      So glad to hear about the car and the job! I'm so happy for you! Now I'm getting paranoid about the Chantix because I do get even lower than low on it! I'm confused as to what to do. It definitely deters the cigarette smoking...there aren't any groups around here, but last summer I joined 'become an ex.org' and actually quit for four whole days and that site and a book (Can't remember the name.) were my only support system! Hope you are doing good today!

    Read Hugbook

  • Goals

    237 days smoke free. Last update Oct 14, 08
  • Support Groups

    • Close Bipolar Disorder

      I have been diagnosed with bipolar disorder for 17 years now, but now have the added diagnosis of "with psychotic features," because I have had a psychotic episode when manic & off my medication. Now I'm really in a bad place because the antipsychotic prescribed to me has left me with tardive dyskinesia and cervical dystonia, which basically means I can't hold still; I have muscle spasms and my head bobs up & down and moves from side to side. I'm very embarrassed by it and am now isolated.

      Treatments

      Clozaril Not Working
      I had to stop this; it was prescribed by my "Abnormal Movements Specialist" (a neurologist), to get rid of my tardive dyskinesia, but it had way to many bad side-effects, and the tardive dyskinesia has all but gone away on its own, from being off the Geodon (160mg) for a considerable length of time.
      Depakote Working / Worked
      This is the one medicine that I have relied on for 17 years; it keeps me stable
      Klonopin Working / Worked
      I rely on 1mg/night to help me sleep; I can be awake for days without it; however, it's extremely addicting, and I'm ready to get off of it, but it's the only thing that helps with the cervical dystonia.
      Lamictal Somewhat Helpful
      Actually, it was very helpful; it gave me a lot of energy, motivation, drive, and really helped me insofar as clear-thinking and concentration. I had to d/c it due to some rare, severe side-effects, but I would recommend it for someone who's got overwhelming depression, and has nowhere else to turn. It's definitely worth a try!
      Lexapro Working / Worked
      10 mg makes me manic, but 5mg works well, but it does cause frequent urination.
      Acupuncture Working / Worked
      it has been very helpful, but I need to go for treatments at least once a week, sometimes, to feel the benefits (e.g., uplifted & stabilized mood).
    • Close Polycystic Kidney Disease (PKD)

      I am 38 and was diagnosed with polycystic kidney disease when I was 18. I inherited it from my father, whose body rejected a transplanted kidney and he died at age 42. I have bipolar disorder and my neuphrologist has told me I will eventually need to have dialysis; I am not a candidate for a transplant, because it's shown to worsen bipolar disorder.

    • Open Anxiety

      I have had GAD for probably the past ten years, but was not dx'd with it until about 2 years ago. Presently, I'm being treated for it with Lexapro (5mg), but that is not working. Prior to that, I "self-medicated" with marijuana & alcohol, but that became a BIG problem for me, and I've now been "in recovery" since 8-23-01. I'm also bipolar, and am 39.

      Treatments

      Acupuncture Working / Worked
      It works while the needles are in, and for a short while thereafter, but has shown no long-term benefit, thus far; I'm going to stick with it, though.
      Klonopin Working / Worked
      It works very well in calming my body down, putting me and keeping me asleep (my favorite part of life), but I cannot take it during the day, as I would be a zombie.
      Chiropractic Adjustment Working / Worked
      I do this about once a month and this is where I get my Folic AcidB12 whose ingredients are highly absorbent by the body.
      Lexapro Not Working
    • Open Dystonia

      I've had dystonia for almost 2 years now. I am 39, am bipolar with GAD, and was referred to an "Abnormal Movements" neurologist by my pdoc in July of 2007. This neurologist dx'd me with tardive dyskinesia, tardive dystonia, and cervical dystonia. I couldn't handle the side effects of the Clozaril he put me on for the tardive dyskinesia/dystonia, and received my first round of Botox injections for the cervical dystonia in 11/07. They take at least a month to take effect.

      Treatments

      Clonazepam Working / Worked
      3mg/bedtime stops the movements & puts me to sleep. it does cause dry eyes, however.
      Acupuncture Somewhat Helpful
      it works while the needles are in and for a short while thereafter but thus far it has shown to be of no longterm help. I will continue to pursue it however.
      Chiropractic Adjustment Working / Worked
      I go about once a month for an adjustment and for a bottle of Folic AcidB12 whose ingredients are highly absorbent by the body.
    • Open Brain Injury

      I had an MVA in 1987 that left me comatose, for about three weeks. I was on life-support, my jaw was broken, and my mouth was wired shut. I later went to rehab for about a month, where I learned to talk, write w/my left hand (r is paralyzed), and eventually, walk.

    • Open Phobia
      Type: Agoraphobia (fear of open spaces)

      I have agoraphobia, & social phobia (to an extent), & have a lot of anxiety when presented w/both situations, esp. when around the unknown.

      Treatments

      Acceptance Working / Worked
      when I practice it/use it on a daily basis
      Hypnotherapy Working / Worked
      it didn't work in the past (@ 10 or so yrs ago), but now I have an excellent therapist, who makes audio tapes for me, that I can listen to, again & again.
      Acupuncture Working / Worked
      I have a very gentle loving experienced acupuncturist who is very sensitive to my needs treats me very well hugs me after each visit.
      Psychotherapy Working / Worked
      I have been seeing a very loving accepting therapist probono for several months now. Shes great at listening giving me positive affirmations suggestions etc.
    • Open Stress Management

      I become very easily stressed & overwhelmed; it affects my bipolar disorder, my anxiety, my dystonia, & others...I'm virtually never calm & relaxed, except when I'm able to sleep. I'm very emotionally sensitive, & the stress heightens this. I'm just looking for help, & support.

      Treatments

      Music Working / Worked
      it can calm & distract me (temporarily)
      Meditation Working / Worked
      I try to meditate when I first get up then at bedtime but its not always possible. I have about 20 great meditation tapes...
      Acupuncture Working / Worked
      I see a really warm loving acupuncturist who was a nurse for several years. She sees me on a sliding scale and charges very little she just wants to help.
      Melatonin Working / Worked
      helps to regulate my sleep schedule 1mgevening more than that can give me strange dreams
      Psychotherapy Working / Worked
      my therapist is very loving accepting compassionate calming has good advicesuggestions for me.
    • Open Hypothyroidism

      I'm exhausted al of the time; I was inpatient in the Spring, & they did a blood test on me there, showing I had hypothyroidism, & they gave me Synthroid (25mcg), but it just makes me not eat; I'm already underweight...

    • Open Diabetes Type 2

      Hi, I am not diabetic (thus far), but have several friends who are diabetic type 2, & I would like to be part of this group to help them.

      Treatments

      Insulin (Regular and NPH) Working / Worked
      Insulin Pump Working / Worked
    • Open Chronic Pain

      I have a lot of chronic pain, from my cervical dystonia, generalized dystonia, & other health problems.

      Treatments

      Chiropractic Adjustment Somewhat Helpful
      I do this about once every month or two; it helps somewhat, especially by putting me "back in balance" from falls, etc.
      Lyrica Not Working
      Does not help my neck pain; I'm not currently taking it.
      Meditation Working / Worked
      I try to do this every morning & evening; I have about 20+ meditation tapes that I listen to.
      Neurontin Not Working
      I cannot handle this anymore, so have d/c'd it (w/dr.'s supervision & consent)
      Physical Therapy Working / Worked
      It's starting to help.
      Acupuncture Working / Worked
      this really helps but only in the short run. My acupuncturist sees me on a slidingscale thats the only way I can afford it.
    • Open Bereavement
      Type: Loss of a Sibling

      I put "loss of a sibling," but I have also experienced the loss of a parent, two dear friends, & a companion, plus the use of my right arm.

      Treatments

      Crying Somewhat Helpful
      it has seemed to help somewhat, but in a way, it's been never-ending.
      Grief Counseling Working / Worked
      I have a very good therapist/social worker, who helps me work through my thoughts & feelings of loss, & who affirms my right to have these feelings, etc.
      Helping Others Working / Worked
      it gets me outside of myself; I can always find people who are as bad off, or worse off, than I, and they are sad & lonely, too; we can comfort one another.
      Music Somewhat Helpful
      Pets Working / Worked
      I had a cat for a long time, who stayed with me & comforted me. We were very close, but then I lost him, too.
      Poetry Somewhat Helpful
      Prayer Somewhat Helpful
      Remembering Somewhat Helpful
      Support from Friends & Family Somewhat Helpful
      It's sort of rare, but is SO comforting when I can get it. Some of my friends are really too young to have lost that much (yet), & many of my older friends have severe health problems, & I do not feel that I have any right to impose my problems on them.
      Support Groups Working / Worked
      It's really good to find "real time" support w/those who are having the same struggles.
      Time Working / Worked
      this has probably been the most helpful, in coming to terms with/accepting all of the loss.
      Meditation Working / Worked
      I have meditation CDs cassette tapes that I listen too mostly at night before I go to sleep.
    • Open ADHD / ADD

      I was diagnosed with ADD at age 21, but at the tine, the only tx available was Ritalin, & my psychiatrist felt I had the potential of abusing that, so he would not treat me w/it. Now, 18 yrs. later, I found out that Strattera is on the market, & I want to pursue treatment.

    • Open Loneliness

      I tend to avoid intimacy out of a fear of being hurt, but now, it's been nearly a decade since I was in a relationship (where I DID get hurt), I'm nearly 40, & I'd like to find a way to explore healthy relationships, & to support others, who are feeling isolated/lonely.

      Treatments

      Psychotherapy Working / Worked
    • Open The 2008 Financial Crisis

      I am SO WORRIED about the economy. I don't really know about how the rest of the world is doing, but I do know that we're slipping into a depression, & I'm SO worried about that, It's gonna be really bad for years to come, we're spending A TRILLION $$$ om being involved with the civil war in Iraq, & soon, we'll no loner be a "super power." The upcoming election scares the tar out oif me!

    • Open Insomnia

      Treatments

      Ambien Working / Worked
      I don't know if it helps
      Counting Sheep Not Working
      Meditation Working / Worked
      Yes; I have a lot of guided meditation tapes, but my tape recorder isn't working, & I can't get a new one right now.
      Music Working / Worked
      somewhat helpful.
      Clonazepam Working / Worked
      it definitely worked at first for a long time thereafter but Ive built up a resistance to it...
      Melatonin Working / Worked
      I take 1 or 2 mg more gives me freaky dreams that wake me up. Im out of it right now. Also it makes me wake early even when I dont need to.
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