Journal Entry for November 27, 2007
November 27, 2007 4:11pm
It has been a long time since I even turned on the computer. Serious funk going on here. A friend from Florida has invited me to come for …
-
About Me
imaskeered
-
About Me
I have lived with chronic illess for 20 years. Some good years, some bad. Seem to get into trouble when I try something new to help myself. Loooking forward to a better year. Last year contained surgery, the death of my Mother, and being flooded out of my house and moving into a beautiful duplex in a questionable neighborhood. I have major problems with my hands so keying is a problem. I want to explain my screen name. I saw this on someone else's signature: I'ma skeered, new moons coming, and I've gotta get a chicken. I'm not really skeered, more like weary.
I have lived with chronic illess for 20 years. Some good years, some bad. Seem to get into trouble when I try something new to help myself. Loooking forward to a better year. Last year contained surgery, the death of my Mother, and being flooded out of my house and moving into a beautiful duplex in a questionable neighborhood. I have major problems with my hands so keying is a problem. I want to explain my screen name. I saw this on someone else's signature: I'ma skeered, new moons coming, and I've
-
Interests
Will always love the companionship of my cat, Kee. Spend time with flowers, books, internet, and spending too much money on Amazon for books. I have twin sons that are 40 and 2 grandchildren that are almost adults now. They all live too far away. I sponsor a young man in Sierre Leone and correspond with him and his family. Would love to meet them all someday.
Will always love the companionship of my cat, Kee. Spend time with flowers, books, internet, and spending
-
-
Recent Activity
-
Journal
-
-
Journal Entry for October 16, 2007
October 16, 2007 6:02pm
I have not been able to get on this journal all day. The cast is off, now I have 4 weeks of a splint almost to my elbow. It's much …
-
Journal Entry for October 14, 2007
October 14, 2007 4:22pm
i am really as low as i go. today is garbage day and my friend, sharon can only spare me 30 minutes of her time today. life sucks today, …
-
Journal Entry for October 9, 2007
October 9, 2007 3:32pm
still 1 handed, but it does get better every day. the cast does not permit twisting my hand enough to key with both. next monday i get the cast off …
-
Journal Entry for October 1, 2007
October 1, 2007 9:22pm
I have been trying to keep myself busy and my mind off tomorrow, that I am now to tired to clean the toilets (necessary) and run the dishwasher and …
-
-
Hugbook
Hug
Hi Sweety, I hardly EVER come here anymore, so it was a special suprise to find this new hug from you. I actually popped in to change my email settings so that I would stop receiving daily updates! I remember that rant about smoking VERY clearly, and I remember being very shocked that "one of our own" could be so cruel. I mean really, don't we get enough crap from others "outside" of the Fibro circle? Most of my family barely talks to me, thinking that the "old me" is one day going to just pop! back up! lol! I think sdwill is actually one of my "friends" (lots of quote-unquote's going on in this message, huh?lol!) I basically lost interest in the whole thing because there is just so much negativity, and really just sooooo much uninformed, misguided advice that I just couldn't bare to look at anymore. i am so very sorrythat you felt you got harrassed in what is supposed to be such a safe place, but you see what I mean, right? Additionally, I made a wonderful friend here, and she turned out to be quite funny and loving. We emailed each other daily, having good laughs and a really great time in general. All of a sudden, when I was having a bad day, she just "had enough stress in her life, and couldn't do [this-meaning our friendship] anymore. It blew my mind, and hurt me deeply. so I have moved on. it's unfortunate, because I liked a lot of the people that were my friends, but I just lost contact with all of them after that, thinking, "who can I trust?".
Oh man, I recently had reason to google myself, and I FREAKED out! There is even a picture of me and my family on there. When I googled my home phone number (which is unlisted) it was even worse, and I used to use it as a fax number on the signature of all my emails. It scared me how much information there was about me, as I can be pretty mouthy on YT, when I feel something is wrong, or someone is being wronged. The information age....no kidding! Well, it was a pleasure, and since it's so easy to find anyway, if you ever want to email me, you certainly can at Tiffanip1202@sbcglobal.net. My name is (obviously) Tiffani. Have a good day, and I hope you are not in too much pain with the weather change. Sincerely~Me
Hug
I hope you are having a good day today. It must be so difficult to have to endure such pain all the time. Bless you.
Hug
Thanks. Hope you are feeling well. Hubby is home but hurting. His back brace is helping.
Hug
Welcome to our family. :)
Thanks
Thanks for the info!! (((((hugs)))))
-
Photos
imaskeered hasn’t uploaded any photos yet
-
Advertisement -
Support Groups
Close Fibromyalgia
celebrating 19 years of fibromyalgia. recently exploring new avenues of research and treatment. lots of new thoughts and treatments. looking forward to reading more...
Treatments
- Acupressure Working / Worked
- I go to a wonderful chiropractor who is a wizard at body work in general. Doesn't take Medicare but only charges $30. Thompson method is what he was trained in.
- Acupuncture Not Working
- Cyclobenzaprine Working / Worked
- Occassionally
- Duragesic Patch Working / Worked
- Allergic to adhesive!
- Neurontin Working / Worked
- does any of it work?
- Ultram Working / Worked
- makes my sjogren's worse
Close Sjogren's Syndrome
I was diagnosed with Sjogren's 3-4 years ago because of ongoing problems with dry eye. I've since realized that the fibro symptoms could all be attributed to Sjogren's. I've been sick for 22 years, on SSDI for 15 and it has been a downhill slide involving the esophagus, intestines, bladder and bowel as well as the dry eye and mouth. My face and scalp are terribly oily but that is the only place that is not like a desert. Having a lot of trouble with gums receding and have lost 2 teeth.
Treatments
- Restasis Not Working
- The burning never went away.
- Plaquenil Too Soon to Tell
- Maybe its just a placebo effect but the last five days Ive had more energy and sleep more soundly. Concerned about the eye side effect deposits on the back of the cornea that should go away once you stop it. Seeing my eye specialist every six months is not a problem because he is the only physician that doesnt treat me like a head case. Went over my meds and said Every one of them caused dry eyes. Ive been whittling down the dosages but most of them are maintenance drugs.
Open Insomnia
Sleeping is the torture at the end of every miserable day. I live with chronic neuropathic pain from Sjogren's Syndrome, Fibromyalgia, Gerd and Hypothryroid. I caught scabies at a SLEEP LAB in June and am having residual pain from that.
Treatments
- Ambien Working / Worked
- I've been on it a couple of years, still working.
- Lunesta Working / Worked
- Works well enough but leaves a nasty taste in my mouth that brushing doesn't get rid of!
- Reading Working / Worked
- After the TV has run out, I look for a book that is not terribly stimulating
- Trazodone Working / Worked
- Have to cut pills to make it 25 mg, because of chemical sensitivities. Use it for sleep, much to low a dose for depression.
- Clonazepam Working / Worked
- I use 1 mg night seems to take the edge off
Open GERD & Heartburn
Drowned in acid after hysterectomy in 1986, never went away.
Treatments
- Antacids Working / Worked
- Avoid Certain Foods / Chemicals Working / Worked
- Always the right thing to do first.
- Baking Soda Working / Worked
- Shouldn't do this too often.
- Carafate Not Working
- Used a long time ago, wasn't effective
- Dietary Modification Working / Worked
- Don't go drinking battery acid...
- Nexium Working / Worked
- Started with Prilosec and then went to Nexium/omeprazole when it came out. Has lots of side effects but cannot do without.
- Prilosec Working / Worked
- Due lack of money, I now take prescription omeprazole. Does just as well without going broke. In the literature, it says that fibromyalgia is a side effect of taking proton pump inhibitors (Nexium, Prilosec, etc.)
- Raising Bed Position Working / Worked
- Sleep in recliner.
- Reglan Not Working
- Tried in the '90"s, no magic cure.
Open Hypothyroidism
Seeking answers. Ran into conflicting information about the treatment of hypothyroidism
Treatments
- Synthroid Working / Worked
- If this is as good as it gets, I want out. Give my diagnosis to somebody that has the energy to deal with it.
