Hanging in there
June 22, 2008 4:44pm
Sorry i haven't been on here in so long. don't really have much time to get on here now. don't know what all i had when i signed up …
KarenS
-
About Me
KarenS
-
About Me
Mom of 2 young children. Currently on medical leave from work. Married. Struggling with the sleep disorders very bad. Looking for info or someone who knows what I'm going through.
Mom of 2 young children. Currently on medical leave from work. Married. Struggling with the sleep disorders very bad. Looking for info or someone who knows what I'm going through.
-
Interests
Movies are number one, poetry, art, music of any kind but mostly country or 80's, baking, reading, comedies and love stories, animals of all kinds
Movies are number one, poetry, art, music of any kind but mostly country or 80's, baking, reading, comedies
-
-
Recent Activity
- Sorry, there is no activity in the My Activity feed.
-
Journal
-
-
Journal Entry for December 1, 2007
December 1, 2007 2:47am
If anyone has any ideas on how to improve the rapidly declining memory, please share. I seem to only remember and pay attention to things associated …
-
Journal Entry for November 5, 2007
November 5, 2007 7:39am
Still here. Just posting a quick update. My son went to half day kindergarten and i got busy. it's a lot to handle cuz there's now school …
-
Journal Entry for June 20, 2007
June 20, 2007 8:17am
Well, my husband, me and my kids went to Idlewild Park, an amusement park with our church. I was worried about riding the rides and my cataplexy or …
-
Journal Entry for May 31, 2007
May 31, 2007 9:18am
This touched me so I thought I'd share with all of you.
Dusty old shoe
I showered and shaved.............. I adjusted my tie.
I got there …
-
-
Hugbook
Hug
I found out any doctor can treat you for narcolepsy, what I mean by that, they dont have to be a neurologist, to treat narcolepsy, they have to be board certified, in other words, its a test they take, then there approved to treat us. My doctor, is an internest. And I would never change doctors. He's helped me greatly. My advice to you would be to call around to physician offices, and ask if they are board certified to treat narcolepsy. It is a larger field to choose from,
Hug
sorry i havent gotten back to you it has been over a year. i am not on here very much but trying to make it a point to do this more often.
Flower
just seeing how you are doing.
Hug
I found your reply to be very informative and helpful to me! I wasnt even the person who oposted the question. Thanks a lot!
Hug
I hope you are having a Great Day. LYL Tonya
-
Photos
-
Advertisement -
Support Groups
Close Narcolepsy
Was falling asleep driving about a year ago. Sought out medical treatment. Through multiple tests, I was diagnosed with Narcolepsy, sleep apnea and restless leg syndrome. Things are still not straightened out. Am currently on medical leave from work and not allowed to drive. Don't know anything about my diseases. Am very emotional and frustrated. Have a 2 year old and a 4 year old to raise with my husband. It's very hard and exhausting. I don't know how to accept all this and handle it all.
Treatments
- Adderall Somewhat Helpful
- Seemed to work at first for a few weeks then seemed to not do anything at all.
- Provigil Too Soon to Tell
- Was on it before and had to get off due to headaches and expense but am back on it in addition to the Adderall for a couple days now.
- Melatonin Working / Worked
- Adding this with my Requip (for the RLS) at night helped significantly. I'm not sure what all it does but I sleep much better with it. Have been on it for about a year.
- Adderall Working / Worked
- Back on Adderall XR 10mg in the morning. Gives me a jump start for the day.
Close Parenting Preschoolers (3-5)
I have a son who's going to be 5 soon and we have a lot of struggling with discipline between us. He doesn't listen to me at all and I end up yelling at him most of the day. He is very bright and has been rasied mostly around adults.
Open Parenting Toddlers (1-3)
Have a 2 year old girl that is high energy, very bright, strong willed and stubborn. Have a hard time handling her. Don't have a lot of energy myself to deal with her.
Open Restless Legs Syndrome
I have had RLS for probably most of my life but have been diagnosed with it for about a year and a half now. I've been on Requip and Melatonin since the beginning and they're wonderful.
Treatments
- Prozac Not Working
- I was put on Prozac for depression and it severely aggrivated my RLS. The doctor said it will do that so I don't know why it's listed as a treatment here.
- Requip Working / Worked
- Currently on the medicine Requip which they gave me from day one. Only side effects are that it makes me tired but I take it at bedtime so that's great. It's a God send.
- Melatonin Working / Worked
- Don't know what it is doing exactly but I know when I started it, it helped tremendously with the RLS. When I've been off it before, my RLS got worse so...
Open Depression
Type: Clinical (Major) DepressionHi! I have been battling depression since I was a teenager. They told me recently that I didn't have depression. That it was the narcolepsy. Now a psychologist says I have depression with biopolar genes. Something about not having true bipolar but carrying the genes affecting me.
Treatments
- Effexor Not Working
- Bad side effects
- Lexapro Not Working
- Too many side effects.
- Prozac Not Working
- Too many side effects and not a good combo with Addreall.
- Psychotherapy Working / Worked
- Always works when I go to a therapist. Talking always helps.
- Zoloft Not Working
- Too many side effects.
- Wellbutrin Not Working
- Too many side effects.
- Lithium Not Working
- They tried this to see if I had bipolar. Didn't do anything.
- Paxil Not Working
- Too many side effects.
- Biaxin Working / Worked
- Absolutely fabulous. Finally off the emotional roller coaster. I'm getting my life back and I like my kids again.
Open Anemia
Type: Iron Deficiency AnemiaJust diagnosed with iron deficient anemia. They didn't tell me how I got it though. They say this is why I have the restless leg syndrome.
Treatments
- Iron Working / Worked
- Prescription iron tablets that have the vitamin C with it and some other stuff. Only been on them for 2 weeks now. Not sure what difference I'm supposed to notice.
Open Back Pain
I've had back pain since forever. I remember back as far as 16 so...recently told I have 3 mildly bulging discs in my lower back and 1 in my neck. All my life I've gone to chiropractors and if I went to a new one, they did they're x-rays first and always thought I had scoliosis until they adjusted me and I was just that far out of place.
Treatments
- Chiropractic Adjustment Working / Worked
- The chiropractor always helps but I have to go for many sessions and then it isn't long before I'm back again so it seems to be a temporary fix.
- Cortisone (Injection) Somewhat Helpful
- Had that done when my shoulder blade comes out. Had twice I think. It helped for a couple days. Not long though.
- Ibuprofen Working / Worked
- I've been taking Motrin 800mg three times a day as needed forever. It helped a lot for years but now it only helps when I ache from the weather.
- Heat Working / Worked
- I sleep most of the night on a heating pad on the highest setting. It loosens everything up enough to sleep but about an hour after I'm off it my back tightens up again.
Open Chronic Pain
I can trace back to 16 with neck, shoulder, back, hips, knees, generally whole body pain. They say it's genetic and I just have a weak back. Dislocated my knee when I was 16 but that was from a birth defect we didn't know about. Never been right since. My back is always out of place. My hips walk themselves out of place regularly and I can reach up for something and my shoulder blades will go out. I have sneezed and had my back go out. Haven't found a permanent fix yet.
Treatments
- Chiropractic Adjustment Working / Worked
- It works while I go but it's not long before I am back again so...
- Ibuprofen Working / Worked
- Been on 800mg three times a day as needed forever now. It doesn't help as much now except with the aches that come with the weather changes.
Open Migraine Headaches
I have hemiplegic migraines. I don't get the headache part. I get stroke type symptoms including facial or whole body numbness, paralyzation of entire body, slurred speech, dizziness, nausea, decreased balance and coordination. These attacks come out of nowhere & can last a couple hours to a couple days. My worst one so far went to complete numbness & paralization of my body & wore off in a couple hours. They gave me this diagnosis because the MRI's kept coming up negative. Anyone heard of this?
Treatments
- Inderal Too Soon to Tell
- Was on 20 mg twice a day. Now only 20mg at night due to made me too tired during the day.
