GoCats76's Journal

Almost literally, 2 steps forward and one back.   We went back to Barrow's Thursday (5/22) and adjusted the baseline.  A very short visit told me that little had changed with the DBS.  He has me take a Sinemet every 4 hours just to get my med levels back.

This was the step back.   I can not easily walk since the dystonia has control of my left foot again. My right hand still shakes enough to make typing and other tasks difficult and a new symptom, pain in my right hand and up my arm.   It feel like it's OD'ed on DBS stimulation.   I don't know.   They said to be patient and after 10 years a couple of weeks is a blip.