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About Me
StayinStrong
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About Me
I was diagnosed with Cystic Fibrosis when I was 6 months old. I was adopted when I was 3 years old and I am now looking for my biological family.
I was diagnosed with Cystic Fibrosis when I was 6 months old. I was adopted when I was 3 years old and I am now looking for my biological family.
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Interests
Hunting, fishing, talking, hanging out with friends.
Hunting, fishing, talking, hanging out with friends.
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Recent Activity
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Journal
StayinStrong hasn’t written any journal entries yet. -
Hugbook
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Just wanted to tell you good luck we adopted our son also
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here a hug to you i know how ytou feel, take care ang
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thanks for the add, friend! best health to you :)
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Hi When did you get out of the hospital? Welcome.
I’m With You
Hi Stayinstrong! My son's godmother has cf and received a lung transplant back in 2004. She's going great guns. I know the life you lead is a hard one but she gives me hope for you all.
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Photos
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Support Groups
Close Cystic Fibrosis
I was diagnosed with Cystic Fibrosis when I was 6 months old and I was adopted when I was 3 years old.
Treatments
- Chest Percussion Working / Worked
- It works well
- Hypertonic Saline Working / Worked
- Works well, but sometimes causes a sore throat
- Procrit Working / Worked
- Works very well
Close Shwachman-Diamond syndrome (SDS)
I was diagnosed with Cystic Fibrosis when I was 6 months old and then I was adopted when I was 3 years old.
Open Narcolepsy
Even when I get full nights of sleep, I still can take like 3-4 naps a day, and then go straight to bed after that.
Treatments
- Adderall Working / Worked
- Been taking it since I was about 8 or 9. It has worked great.
