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  • About Me

    Image of taj616

    taj616

    Female, 39
    WI, USA
    Member since August 4, 2007

    • About Me

      *Me -- Dx with Irritable Bowel Syndrome-D in 1989-90 also Dx with Lyme Disease July '06 (treated successfully) *10-year old daughter Dx December '06 with Crohn's Disease. *7-year old daughter Dx April '07 with Irritable Bowel Syndrome *40-year old brother just Dx with Lymphoma August '07 *I'm a stay-at-home mom who volunteers at my kids school and works there during lunch to keep the kids in line.

      *Me -- Dx with Irritable Bowel Syndrome-D in 1989-90 also Dx with Lyme Disease July '06 (treated successfully) *10-year old daughter Dx December '06 with Crohn's Disease. *7-year old daughter Dx April '07 with Irritable Bowel Syndrome *40-year old brother just Dx with Lymphoma August '07 *I'm a stay-at-home mom who volunteers at my kids school and works there during lunch to keep the kids in line.

    • Interests

      love my family love friends love animals love music

      love my family love friends love animals love music

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Saturday, September 13, 2008

      Mood September 13, 2008 6:38pm

      Today is a sad day.  Ashley Debes would have turned 12 years old on this day.  Instead of being a happy day, my heart is filled with …

    • Monday, July 7, 2008

      Mood July 7, 2008 6:39pm

      It's with a heavy heart that I write this.  Our beloved dog, Jasmine, passed away last night at the ripe old age of 15-years …
    • Friday, May 9th

      Mood May 9, 2008 11:04am

      We met for the last time with Taylor's Peds GI who is retiring this summer.  Everything looks good Crohn's-wise except for Taylor's …

    • Tuesday, May 6, 2008

      Mood May 6, 2008 11:09am

      It's a beautiful day today -- supposed to be 70 (wow!).  I've been hoping for good weather so I'd better take advantage of it …

    • Monday, April 21, 2008

      Mood April 21, 2008 11:16pm

      Our beloved dog, Jasmine, turned 15 years old today!  WOW that's 105 in dog years.  How incredible to have been blessed with her …

    Read Journal

  • Hugbook

    Give taj616 a hug



    • Hug

      From CherKeg November 5, 2008

      Hi! How are things going with your family? I have a question....if you have severe stomach pains & diarrhea (from crohn's) can it cause you to puke?? Kayla is home sick today, and I'm trying to figure out if it's the flu, or the start of a bad flare-up. Thanks.

    • Flower

      From CherKeg October 1, 2008

      Thinking of you!

    • Flower

      From CherKeg September 15, 2008

      Hi! Thinking of you! How are you doing? Hugs, Cheryl

    • Hug

      From illfor21yrsDon July 29, 2008

      HEY how have you been? I have been gone for awhile have I missed anything good?

    • Hug

      From CherKeg July 24, 2008

      Hi! How are you & your family doing? Hugs, Cheryl

    Read Hugbook

  • Goals

    Progress

    0 %

    Goal End Date is May 31, 08 545 days ago.
    Current Weight (Lbs)
    145
  • Support Groups

    • Close Irritable Bowel Syndrome (IBS)

      I was diagnosed with IBS around 1990 - Had terrible trouble with it until 2-years ago when I did Weight Watchers,lost 30lbs and ate better/drank more water. Now my IBS is very minimal. My 7 year old daughter has been diagnosed with IBS My 10 year old daughter was diagnosed with Crohn's Disease (xmas '06)

    • Close Lyme Disease

      Diagonsed with Lyme disease in July '06 -- never knew I was bitten. No bullseye rash, etc. until I got so very sick.

    • Open Crohn's Disease & Ulcerative Colitis

      My 10-year old was diagnosed with Crohn's Christmas '06 (she was 9 at the time). Still working on trying to get her to remission.

      Treatments

      Entocort Working / Worked
      Helped improve her appetite, stopped her weight loss -- slowly brought down her inflammation but plateaued after 3 months.
      Lialda Not Working
      Made her symptoms a lot worse! stopped after 6-days
      Prednisone Working / Worked
      Worked great at the start. Got weaned off and then was just on the 6MP...symptoms got worse again, lack of appetite, weight loss, etc. Don't really want to do this again if we don't have to.
      Purinethol Working / Worked
      She's been on this since the beginning. I guess it works okay -- she gets very thirsty from time to time from this though.
      Remicade Working / Worked
      After three infusions her bloodwork is all back to normal, and so are her BM's! As far as I'm concerned, it's a miracle in an IV bag!
    • Open Non-hodgkin's Lymphoma

      My brother (40) was just diagnosed with nodal marginal zone B-cell lymphoma (NMZ), stage two (I believe as it's not above his diaphram).

    • Open Pet Bereavement

      My beloved Norwegian Elkhound, Jasmine, passed away this past Saturday (7/5/08). She was 15-years old and my very first "baby". I miss her terribly. Everywhere I expect to see her she is no longer there.

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