Journal Entry for January 10, 2007
January 10, 2007 2:27am
1/9/07, It is 2:23 a.m. meaning it is another sleepless night. I still have trouble believing that I developed Cushings for the second time. To go …
RhondaK
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About Me
RhondaK
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About Me
I am a Single Female with a grown daughter 27 yrs of age. Have a BA in Psychology & in Criminal Justice, graduate status MSW. I have a rottweiler who is a great companion. I love doing crafts, esp. working with my hands. During nice weather I like to spend alot of time at my picnic grove in the wooded area of my property where it is peaceful & I can meditate. Life is difficult but I am hanging in there with every day being a learning experience.
I am a Single Female with a grown daughter 27 yrs of age. Have a BA in Psychology & in Criminal Justice, graduate status MSW. I have a rottweiler who is a great companion. I love doing crafts, esp. working with my hands. During nice weather I like to spend alot of time at my picnic grove in the wooded area of my property where it is peaceful & I can meditate. Life is difficult but I am hanging in there with every day being a learning experience.
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Rhondak, your story has inspired me. I just got so depressed today. I am newly diagnosed with carcinoid, being tested to smithereens, no treatment yet. Tomorrow I see the oncologist for the first shot of somavastatin or whatever the drug is to alleviate symptoms. I'm sending this hug for you and wishing you a Happy Valentine's Day. You are a trouper and your courage and inspiration will help me pull through this.
Prayer
Hi, Rhonda! I was lucky enough to have just one carcinoid tumor removed, about 6 years ago -- it had blocked the neck of my appendix, giving me appendicitis! Otherwise, my wierd symptoms would doubtless be continuing. Sounds like your health problems are much more than mine -- I'll say a little prayer for you.
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Close Cushing's Syndrome
Diagnosed with Cushings Syndrome 1985, had hypopituitarism, bilateral adrenalectomy 1985-86, led to MANY other difficulties. Developed AVN of my joints leading to bilateral total hip replacements 1990-91, rght shoulder replacement 1994. May 2006 diagnosed with a carcinoid tumor at dueodendium with a 3rd adrenal gland growing inside it giving me cushings for the 2nd time. Surgery was rough but got through & was doing well but now still have very high levels of ACTH & a nelson's tumor somewhere in my body,developed symptoms of cushings again for the 3rd time. Doctors are all at a loss. Please if you know a Dr and/or researcher willing to take on this physicians anomaly PLEASE contact me.
Treatments
- Surgery Working / Worked
- 1985-86 Hypopituitarism & Bilateral Adrenalectomy. 2006 diagnosed `w carcinoid `w 3rd Adrenal init. Now ACTH hi & nelsons tumor. On replacement drug therapy since 1985.
- Massage Working / Worked
- Has helped with stress, hypertension & overal relaxation. Also helps with muscle spasms, weakness and cramps. I am fortunate to have my massage therapist come to my home
- Aqua Therapy Working / Worked
- Emersion in warm water has been the best therapy that I could do for myself. It takes the pressure off the muscles & joints allowing for comfortable movement & exercise.
Close Carcinoid Syndrome
I had surgery for the removal of a carcinoid tumor in May of 2006. Diagnosed with Cushings Syndrome in 1985 and having my pituitary and adrenal glands removed I was one of the rare people to get this yet too. I have to be followed with MRI's to try to find these sneaky little buggers. I guess it is never over with carcinoid cancer. It is just a matter of living day to day. Please see Cushing Syndrome community for more of my information.
Treatments
- Surgery Working / Worked
- The surgery was horrible.It was a long hard recovery for it & I still do not feel like I should. No cure or treatment. So only constant watch for more with MRI's & tests
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