bad day
March 13, 2008 10:32pm
not a good day today,my marriage sucks.i wish i ciuld work so i could get out of here.my husband treats me like crap and i feel stuck,dont know what …
Goal Completed on Dec 22, 07
AprilThmpson
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About Me
AprilThmpson
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About Me
im 47 years old have been told i have sarcoidosisand put on 40mg of prednisone its been one month , im scared of going through withdrawlwhen the time comes. will sarcoidosis come back?what about natural supplements?lungs at 43%and stiff im scared.
im 47 years old have been told i have sarcoidosisand put on 40mg of prednisone its been one month , im scared of going through withdrawlwhen the time comes. will sarcoidosis come back?what about natural supplements?lungs at 43%and stiff im scared.
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Interests
bible study, crafts, cooking, nusic and walking on trails, collecting teapots and blue willow dishes
bible study, crafts, cooking, nusic and walking on trails, collecting teapots and blue willow dishes
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Recent Activity
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Journal
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Remission
February 29, 2008 7:41pm
; i went to see lung doc ,had blood work done and my sarc is in remission.i started taking a new drug to supress my immune system and antibiotics 3 times week to keep from getting sick.Ifeel a lot better,istill feel some effects from the prednisone and im very out of breath especially walking up steps but at least i can see a positive future end to all this madness,this has been one wild and crazy ride.i hope i can stay on the meds permently,have to have blood work rvery 2 weeks to check my liver function. I feel my prayers and the prayers of my friends have been answered.All praise to Jehovah God,our life giver and sustainer.I will start lung rehab on Tuesday.hopefully i will be able to excercise soon and get some of this weight off.I feel like a stuffed pig,i think the prednisone makes you feel that way . Im still sleepy a lot ,probly because my body is healing.My spirits are sky high.I have come a long way.To be honest, i was starting to wish i would die in my sleep and wait for the ressurection.My oldest son calls me a tough old girl,i guess i am. I hope all my friends are doing well also,and you all are in my prayers. I also pray my fibrsis stays the same,Ido still have some granulomas in my lungs but at least my body is not making more. …
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Journal Entry for December 22, 2007
December 22, 2007 12:07am
my personal bible study has increased greatly and i pray more times than i can count in a day.i try to share the good news of Gods kingdom soom to …
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Journal Entry for November 25, 2007
November 25, 2007 7:56pm
feeling fair today,just fatiguedand slight headache.working on staying positiveand keeping a good outlookand enjoying being alive.im becoming more …
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Photos
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Goals
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Support Groups
Close Sarcoidosis
have srcoidosis hard to breath ,skin rashes losing my voice ,currently on 30mg prednisone
Treatments
- Prednisone Working / Worked
- mood swings that are wild ,want to cry all the time losing my voice voice is very raspy and sometimes its hard ro talk i have to stop talking for a while
- Advair Working / Worked
- given advair for asthma and to help my voice it helps asthma some,not voive
Close Pulmonary Fibrosis
i was dx with sarcoidosisin may 07. taking 40mg prednisone. developed pul hypertension,deabetesand pul.fibrosis.waiting to see whats next.also taking plaquenil and advair hard to breathe all the time,low back pain.
Treatments
- Prednisone Not Working
- things have been very hard for me ,it seems as though each day is a little worse,meds have made things worse than they were
- Plaquenil Too Soon to Tell
- prednisone causing too many bad side effectsso doc is weaning me off and added plaquenil.i have a little bit of blurry vision and its harder to read,need stronger eyeglasses.
