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  • About Me

    Image of NYCFAN

    NYCFAN

    Female, 38
    NJ, USA
    Member since January 9, 2007

  • Recent Activity

    • Sorry, there is no activity in the My Activity feed.
  • Journal

    • Felt OK For Quite a While

      Mood April 9, 2009 8:55pm

      I've been feeling quite well since last August.  I've had a lot of stress inmy life over the past 6 months so I was surprised that I …

    • Spoke Too Soon...

      Mood August 13, 2008 7:38pm

      OK, so it seems I spoke too soon.  I started with a flare up Monday morning - just a small amount of blood with bowel movement, same Tues & …
    • Journal Entry for August 10, 2008

      Mood August 10, 2008 1:28pm

      I've actually been feeling OK recently.  My GI switched me from Asacol to Colazol (I'm taking the generic Balsalazide 750 mg 3 tablets …

    • Journal Entry for March 22, 2008

      Mood March 22, 2008 9:51am

      Well, here I am again not feeling so good.

       

      I kind of knew this was inevitable.  Been stressing too much and working all hours and …

    • Journal Entry for November 6, 2007

      Mood November 6, 2007 7:46pm

      I've been feeling quite run down this past week.  Yesterday morning and this morning things have been 'on the edge of a …

    Read Journal

  • Hugbook

    Give NYCFAN a hug



    • Hug

      From NATURALLYCURED March 23, 2008

      wow that's great to hear! i never meant to sound like the natural way is the ONLY way, its just what works for me! glad to hear your doc is opened up to the 'broader view'! thanks again for the hug!

    • Hug

      From cma2003 October 23, 2007

      ty for the support. It is aweful being stuck and yet, not well enough to care.

    • Hug

      From jaimeg March 6, 2007

      Thanks for thinking of me. I am well and I hope you are too.

    • Hug

      From melissa05 January 25, 2007

    • Hug

      From melissa05 January 21, 2007

      thanks they are, she's in a home

    Read Hugbook

  • Support Groups

    • Close Crohn's Disease & Ulcerative Colitis

      Diagnosed with ulcerative colitis in 1995. Had a rough time of things for the first 3 years then had a nice 2.5 yr period of remission. Past 5 yrs have been up and down with a bad flare up ~ every year. Treatment has been through my GI with Asacol and prednisone also took 6MP for a time. Have looked at more natural remedies this past year. Have colonoscopies every 18 months or so for cancer screening.

      Treatments

      Asacol Somewhat Helpful
      Have taken 2x 400mg 3x per day since the start. Never missed a dose. Couldn't tell you if it's working since I've never been without it and I still experience flares.
      Avoid Certain Foods / Chemicals Working / Worked
      During flare ups I tend to eat basic bland foods....no need to subject a delicate system to any further aggrivation.
      Entocort Not Working
      Tried this to avoid prednisone once but it didn't work for me - I think it's more intended for CD than UC but it was worth a try.
      Prednisone Working / Worked
      Works although the side effects are nasty. Generally I can get a moderate flare up well under control within a month. Two months for a really bad flare up.
      Purinethol Not Working
      I tried this for about a year and found that I came down with so many other infections that it didn't seem worth it. Still experienced flares when taking 6MP.
      Colazal Working / Worked
      Not sure, only been on it 2 months and just starting with a smll flare up - was taking Asacol before this
  • Friends


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