View my endometriosis journal offsite
March 24, 2009 10:21pm
Just wanted to let you know that I have a massive endometriosis diary going over at http://www.livingwithendometriosis.org/steph/, so you can …
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About Me
zept
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About Me
I am originally from Detroit, Michigan, but I have lived in California for the past 11 years. I went to school to be a teacher but after moving to California, I started working in the computer industry because it pays much better. After years of continual job changes (that is the nature of the computer industry), a company I was working for fired me for being out sick 1-3 days per month. I gave full disclosure of my condition. They waited until after I had my surgery, which diagnosed me with stage III Endometriosis, to hire me as a full timer. I came back to work and within a couple of months began missing work again from the illness. The company changed its tune and started harrassing me. I pleaded with them that they had full disclosure, doctor's and surgeon's notes, the works. They replied, "we thought the surgery would cure you." That's what started the fight - they had been told there is no cure for this illness. They didn't care, they wanted me gone, even though I was a top performer in the company. I've had Endo for 21 years, and for that long, doctors kept telling me either it was all in my head, it's part of being a woman, or that I *only* had Dysmenorrhea (painful period). So this is not my first fight against an establishment. I finally found a doctor in 2006 who believed me, and she did the surgery in 2007. Unfortunately, the disease is stage III, which is 'moderate', and was too close to my bladder to remove all of the disease. After surgery, I tried Yasmin - a hormone mix of synthetic estrogen and progesterone, but that made me clinically insane and suicidal. So now I'm back to doing what I did all the years before surgery - managing the pain through dietary modification, exercise and pain medication. At present, I am re-employed in a field I used to work in 12 years ago - I've gone back to the field of child care and currently work as a private nanny. I have respect and trust from real people, not corporate overlords. I have my sanity back!
I am originally from Detroit, Michigan, but I have lived in California for the past 11 years. I went to school to be a teacher but after moving to California, I started working in the computer industry because it pays much better. After years of continual job changes (that is the nature of the computer industry), a company I was working for fired me for being out sick 1-3 days per month. I gave full disclosure of my condition. They waited until after I had my surgery, which diagnosed me with stage
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Interests
Spending time with my honey, IRC, online research, genealogy, astrology, travel, writing, bicycling, walking
Spending time with my honey, IRC, online research, genealogy, astrology, travel, writing, bicycling,
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Recent Activity
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Journal
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Catching up
February 11, 2009 12:25pm
Well I've been MIA again for two months. Sorry about that. I've been overwhelmed with trying to keep up on two other endometriosis forums, …
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Painful month
December 1, 2008 9:24pm
I barely had any bleeding from November 2nd to November 4th, but I had moderate to severe low back pain. What little bleeding I did have was …
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It begins
November 2, 2008 10:08am
Ow. Just woke up a bit ago, feeling like someone crushed my lower back. Now the pain extends to my pelvic region. It hurts to sit or lie down, and …
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Journal Entry for September 16, 2008
September 16, 2008 10:09pm
And just like that, on Monday the pain and bleeding went away. The only thing that remained was the lower back pain.
On Sunday I …
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Hugbook
Little Love
I dont know if anyone has told you but I wanted to say thank you for being there for the younger generation of women on the Endo support group. There are so many teens out there who have been ignored, so many women who have given up their fight, and still more who have been told that there is nothing more that can be done. Being told that in their teenage years is so terrifying, and I am so glad that you have been there to help guide the younger generation and provide support. I can not thank you enough for all that you do! I hope that one day we will be able to look back on our struggles like it was a bad dream.... but until then I wish you every happiness and hope you will find comfort through these hard years!
Flower
Hope you are having a great day........XX
Cheers
I Hope you have a Happy New Year!!
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Little Love
Video blogging sounds like a great idea! Love and hugs to you..XxXx
High Five
Great post!
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Photos
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Support Groups
Close Endometriosis
Have had Endo for 21 years. Just had surgery to diagnose it in Feb, 2007. Surgery didn't work. Hormones made me psycho. I'm managing the pain through medication and diet.
Treatments
- Surgery Not Working
- The surgery diagnosed me with Stage III Endo. My left ovary was stuck to the back of my uterus (surgeon saved it). The pain has not been helped but I have a diagnosis.
