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  • About Me

    Image of twill

    twill

    Female, 44
    New Plymouth, NZL
    Member since July 22, 2007

    • About Me

      *age 42* MS 8 yrs r/rm * Christian * Married * 2 wonderful boys * work p/time From New Zealand....GO THE ALL BLACKS!!! Diagnosed Multiple Sclerosis 8 yrs ago. Became a Christian 9 yrs ago. If you'd told me I would become a Christian, say, 10 yrs ago I wouldn't have believed you....but God moves in mysterious ways, and really pulled me out of a deep place I found myself in. Haven't looked back since then. Divorced '96 and husband moved to Australia. Have two teenage boys (the eldest went to live with his dad 2 yrs after diagnosis as I was in such bad health)and not coping. He's doing well and in contact a lot (but speaks like an Australian!) - comes for Christmases. My other son is in his first year in High School...and rugby mad. Recently remarried... to a wonderful South African Christian man (accountant) who I met at church. I work (part-time)in office with Intellectually Handicapped people - my profession was P.A. before MS. I love all things creative - jewellery-making is my passion and is a great hobbie for someone like me who suffers terribly from fatigue. Looking for contact with MS folk - MS seems a lonely place to be.

      *age 42* MS 8 yrs r/rm * Christian * Married * 2 wonderful boys * work p/time From New Zealand....GO THE ALL BLACKS!!! Diagnosed Multiple Sclerosis 8 yrs ago. Became a Christian 9 yrs ago. If you'd told me I would become a Christian, say, 10 yrs ago I wouldn't have believed you....but God moves in mysterious ways, and really pulled me out of a deep place I found myself in. Haven't looked back since then. Divorced '96 and husband moved to Australia. Have two teenage boys (the eldest went to live with

    • Interests

      jewellery making, biographies, music, animals, my family, my boys are fantastic!, art, feeding the ducks when that's all the energy I can manage - love nature (good therapy too), love farms (grew up on a dairy/sheep farm. Moved to city when 10). I love all things creative - jewellery making is my passion and is a great hobbie for someone like me who suffers terribly from fatigue. Have done mosaics, calligraphy, art.

      jewellery making, biographies, music, animals, my family, my boys are fantastic!, art, feeding the ducks

  • Journal

    • Journal Entry for August 1, 2007

      Mood August 1, 2007 4:14pm

      Yesterday I got quite 'down'-feeling.  I know that PMS will be playing a part, but also I do wonder if this Modifinil is effecting the …

    • Journal Entry for July 31, 2007

      Mood July 31, 2007 5:05pm

      Have been a little 'strange' on the Modifinil(Provigil)...I think, too, though that it has something to do with PMS also.....have had …

    • Journal Entry for July 29, 2007

      Mood July 29, 2007 4:27pm

      Started Mopdafinil (Provigil) on

      -Fri...100mg morning, then another 100mg lunchtime - bit of anxiety, but much more energy...amazing …

    • Journal Entry for July 25, 2007

      Mood July 25, 2007 8:29pm

      I've been tagged so writing 10 things about me!..

      1.Live in New Zealand, New Plymouth and can see the mountain and the ocean from  our …

    • Journal Entry for July 25, 2007

      Mood July 25, 2007 7:49pm

      Anyone tried the med 'Modafinil'?  It's for fatigue and I'm starting on it next week.  I'd appreciate hearing your …

    Read Journal

  • Hugbook

    Give twill a hug



    • Hug

      From CherieAmour May 25, 2008

      You are not alone fellow Kiwi. Come visit us at KIWIS FROM AOTEAROA, where you can meet like minded people from your own little neck in the woods! Love to see you there..HUGS Jo.

    • Snowman

      From kazinmich December 25, 2007

      Wishing you a very Merry Christmas and most wonderful New Year!

    • Present

      From MGGM327 December 25, 2007

      Merry Christmas and Happy New Year!!!

    • Hug

      From kazinmich October 18, 2007

      Hope you are feeling well. Hugz!

    • Hug

      From Carol1030 October 5, 2007

      Good morning..hope all is well...love Carol

    Read Hugbook

  • Support Groups

    • Close Multiple Sclerosis (MS)
      Type: Relapsing-remitting MS

      Diagnosed MS 8 yrs ago. Cognitive problems/fatigue pretty bad/weakness and uncoordinated. Relapsing Remitting. 42 yrs old - became Christian a yr before diagnosis which helps enormously.

      Treatments

      Avonex Not Working
      I had a bad reaction to this so had to stop
      Vitamin B12 Working / Worked
      I seem to need these - they help my energy levels and gait
      Fish Oil Working / Worked
      Salmon Oil is an anti-inflammatory
      Provigil Not Working
      (Provigil) Worked for first day or two but then had a severe reaction....migraine, depression, chest pains, visual problems, sore back, even worse fatigue than usual
      Prozac Working / Worked
      helps with my cognitive problems, which were really bad
    • Close Celiac Disease

      diagnosed few yrs ago - helped with pain in my legs when I went g.f.

      Treatments

      Avoid Certain Foods / Chemicals Working / Worked
      preservatives/colourings/wheat
      Gluten Free Diet Working / Worked
    • Open Migraine Headaches

      have had since teenager

      Treatments

      Avoid Certain Foods / Chemicals Working / Worked
      preservatives/oranges/chocolate/too much cheese/most unnatural food
  • Groups

  • Friends


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