Aftershocks...
September 10, 2008 6:29am
Had to get triggers to stop intense spasms-for the most part they worked. Doctor says the insurance company is playing God with my life (like many of …
Lynr 
11:59am
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About Me
Lynr
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About Me
Married my best friend April 14, 2007. He is incredibly supportive of me and that is tough to do because I am a terrible patient! We both are chronic pain sufferers and are used to taking care of ourselves and everyone else so having someone care for us takes a bit of getting used to! Both of us seem to be getting worse rather than better.I am a Educational/Psychology Professional and work with children/adolescents with Emotional and Behavioral Disorders which can be very challenging even on my good days! I am a mother of two wonderful girls ages 15 and 20. I'd like to say that I have come to terms with my illness but funky things will happen to my body;numbness in various parts of my body, thyroid goes haywire, etc. Right now , it seems to be attacking all of my connective tissues/joints....with lupus-stay tuned! I am trying very hard not be a victim to my disease.
Married my best friend April 14, 2007. He is incredibly supportive of me and that is tough to do because I am a terrible patient! We both are chronic pain sufferers and are used to taking care of ourselves and everyone else so having someone care for us takes a bit of getting used to! Both of us seem to be getting worse rather than better.I am a Educational/Psychology Professional and work with children/adolescents with Emotional and Behavioral Disorders which can be very challenging even on my good
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Interests
I enjoy swimming, spending time with my family, reading, sketching, and listening to music and eating ice cream.Of course I also enjoy and relish an afternoon nap! If my body allows it, I love to take the horses for a ride and go over a few jumps!
I enjoy swimming, spending time with my family, reading, sketching, and listening to music and eating
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Recent Activity
Recently:
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1 hug received
Yesterday
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Lynr updated their status 11:59am
All repair work done! Let's hope that's the last of it for awhile! Now the...…
Friday
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Lynr updated their status 6:01am
Surgery today, wish me luck! Fever is finally down so I should be good to...…
November 2
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Lynr updated their status 11:05am
OH-NO! The H1N1 virus has hit MY house:( Daughter sick with it and my...…
October 30
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Journal
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Keeping up....
July 31, 2008 6:03am
Thank you all for your kind words and support during the past week of grief. I'm trying my best to keep on top of the rest and stress so I …
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Journal Entry for July 25, 2008
July 25, 2008 10:12pm
Dear all,
Aside from dealing with the daily issues of chronic pain from lupus and back pain, I got hit with a huge misfortune yesterday...one of my …
This entry is private
This entry is private
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Hugbook
Hug
You may not get this now, till after your surgery, I should have sent it yesterday! I just wanted to let you know I was thinking about you and praying for you today.. I'm sure everything will go very well! Take care..
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Hug
Ahh.. thank you! I wrote your surgery date on my calendar (11/6), so I will be thinking of you and praying for you too! Don't overdo before the surgery... take care of yourself!
Prayer
HI Lynr, It's been raining here in Houston all day and I don't have to tell you what my day has been like. Not even pain meds are effective. Do you and husband have those kind of days? The only thing I can do is take ambien and sleep.Have you guys tried this ? .
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Hug
Lyn, you have a wonderful way with words. All your replies to my post have been so uplifting to me. It's like my angels are speaking through you! I really do go and read what you've written again and again. And your posts today were just more icing on my cake. I've printed them off to take with me tomorrow while I get my infusion of Tysabri (I'm there 2-3 hours). You are a sweetheart!! Take care..
Flower
I meant to ask if you are still doing the water therapy. I tried a class at the Y but the water was too cold and I ached just about all the time. Did it for several years too so gave it every chance. I actually felt better when I stopped. But now I'm trying to find a WARM water class which I think will make a big difference. Take care today my friend.
Peggy
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Support Groups
Close Lupus
Formal diagnosis in late 2006 early 2007 after biopsy of full body rash, numerous other tests, and extensive review of medical history. Honestly, it has connected a lot of dots for me (and docs)-have had years and years of unexplained medical issues. Have had some pretty rough times (kidneys shut down, thyroid out of whack, etc) but the lupus seems to primarily affect my connective tissue area and lots of pain in my joints. I try my best to stay on top of this disease! I love water therapy!
Treatments
- Plaquenil Working / Worked
- appears to help with the rash although I am not doing real well with the eye exams.
- Prednisone Working / Worked
- Have difficulty tolerating even half doses; don't sleep, don't east and I feel like killing everyone in sight!
- Aqua Therapy Working / Worked
- I live for my water! Swimming cant do now because of my shoulders floating soaking in the jacuzzi or tub you name Im there! Takes all the pressure off the jointsAhhhhhhh!
Close Parenting Teenagers (12-18)
I have two beautiful girls ages 15 and 20. My oldest has made a life for herself in South Carolina (school and work) and I share custody of my younger daughter with my ex. Life gets a bit complicated and overwhelming at times trying to keep up with everything (live in 2 places, work full time in a very demanding career with children/adolescents with psychiatric and behavioral issues) while dealing with my chronic health issues. I'm recently remarried and he knows how important the kids are!
Treatments
- Patience Working / Worked
- Listen, really listen to your children! It's so important to know what is going on in thier lives!
- Psychotherapy Working / Worked
- It's so important to work through issues as they arise- stuffing them will cause resentments and will make you sick!
Open Chronic Pain
Hi, I was diagnosed with lupus (SLE) in January 2007, I knew there had to be more going on than just than just the degenerative disc disorder-as if that isn't bad enough! My back is bad; a blown
Treatments
- Heat Working / Worked
- I love my heating pad but find that moist heat works best!
- Lidoderm Somewhat Helpful
- Sometimes they work for spot areas of pain in the joints during bad weather days.
- Nerve Blocks Working / Worked
- I get facet injections every 8-10 weeks and they work great-epidurals did not help.
- Oxycodone Working / Worked
- The oxycontin helps considerably for long term pain relief-the vicodin wasn't cutting it!
- Physical Therapy Working / Worked
- It really helps but the insurance won't pay for continued treatment. Due to a steel rod and titanium plate in my leg I walk with a limp so I undo the treatment and need to go back every week.
- Topamax Considering
- Didn't know this was a treatment option for pain. Have been prescribed this in the past but not for the pain and I lost alot of weight.
Open Back Pain
Blown L-3, L-4,L-5, and S-1 are herniated. Had major leg surgery which realigned my spine- one sneeze two years later and that was it!
Treatments
- Chiropractic Adjustment Working / Worked
- Has helped in the past.
- Epidural Injection Working / Worked
- These didn't work, I get facet injections every 8-10 weeks now and they help tremendously.
- Heat Working / Worked
- The heating pad feels good but nothing replaces the hot baths or the hot tub!
- Physical Therapy Working / Worked
- I go in every years or so when I absolutely can't stand it any more. The leg surgery that I had has left permanent damage and it causes the right hip to rotate back which curves the lower portion of my back:(
- Stretching Working / Worked
- Have to do this before I even get out of bed!
- Oxycodone Working / Worked
- Was taking vicodin but I was dxd with lupus in January of 07 doc switch me to something I didnt have to take as often. It helps keep the pain to a dull roar.
